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Will: =20

I totally agree with your comments about exercise.  I am 39 yr. and in =
my 15th year of living with PD.  I have been doing a exercise routine =
for the last year and when I just miss a day or two of doing it my body =
gets very stiff and rigid.  The only problem I have to deal with is =
possible weight loss, which I can't afford.  I am still able to drive a =
car and most important of all I am able to keep up with my 2 girls.

Susan A. Dallas TX 39yrs/dx15yrs

-----Original Message-----
From:   Will A. Kuipers [SMTP:[log in to unmask]]
Sent:   Wednesday, October 01, 1997 8:54 PM
To:     Multiple recipients of list PARKINSN
Subject:        Re: resubscribe

Kathy Barras wrote:

<Will,

<I believe I missed an earlier posting, but could you please explain =
what
<kind of program (exercise?) that you have joined?

Hello Kathy,

This what I wrote earlier about this subject:

<Subj.:  Physical Therapy exercises

<Hi Loretta,

<How sweet of you to inquire.
<I was like your husband probably. I did not see any useful use for
unproductive motions, in spite of the urging <by my wife and daughters. =
I
thought some walking and doing the maintenance chores were all the =
activity
I <would need.
<I did not realize how much time of the day was spent just sitting. =
Muscle
stiffness gets progressively worse, <until there are some movements that
you cannot make. As they say: "Use it or lose it!!"
<These exercises are great and they have helped me loosen up again.
<They are done mostly sitting in a chair, except for a number of =
exercises
in which one stands behind the <chair.
<The chair is then really a prop to help balance.
<All the muscles get a turn in a good program. You feel wonderful after
seriously taking part in an hours worth <of these exercises. Some people =
in
the group are already at the stage where they can hardly move anything.
<They just stare at the therapist and probably in their mind think that
they are doing that themselves too.
<Others have trouble telling right from left. Nobody is  being forced.
Everybody can do whatever they think they <can manage. I feel lucky I =
can
still do most anything.
<My neurologist is amazed, when he checks me out that I have apparently
still no, or very little, ratcheting <effects when moving neck muscles =
and
elbows and he finds that I can walk almost normal. After having <been on =
a
3 month visit schedule, he moved me to a 6 month schedule. He says:
"Whatever you are doing, <keep on doing it. It seems to work!"
<I still drive a car and remember that in the first year after diagnosis =
I
had trouble looking back because of stiff <neck muscles. Now, five years
later I can almost turn my head as I used to when young. It hurts a bit
now, but <I can move it!=20
<If you have access to a program like that, by all means try to get your
husband to join. He'll be glad he did!

<Best wishes,

<Will Kuipers  =20
Dallas, Texas      76-dx'91    <<[log in to unmask]

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