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There are 19 messages totalling 1047 lines in this issue.

Topics in this special issue:

  1. Udall next steps; PWP Congress; Unity
  2. Health for profit...
  3. NEWS: Getting Vitamin C on the Brain
  4. better than collagen
  5. I've learned... (2)
  6. Gamma Knife May Replace Surgery For Parkinson's Patients
  7. R: New member (2)
  8. HEADS UP =3D OTC Drugs & PD
  9. Requip Diary Days 8 thru 12 by Dale Severance (3)
 10. dear
 11. BERNIE BARBER'S WP FILE CONVERTED TO TXT <fwd>
 12. Another Survey? Brian Collins et al
 13. FW: Elizabeth Butler
 14. PMID: 9371905: Olfactory dysfunction in familial PD 27/0 USA -Reply
 15. CSRINDX DEC 97 Part 2 of 2

----------------------------------------------------------------------

Date: Thu, 4 Dec 1997 01:13:06 +0000
From: Phil Tompkins <[log in to unmask]>
Subject: Udall next steps; PWP Congress; Unity

This has been my first year of involvement with the Udall Bill.
Because my crazy job limits my personal time and energy, and because
I have no experience in political activism, I've remained a PFC in
the activist chain of command. My remarks here are those of a
newcomer, so please tell me if I'm way off base.

I'm guessing that attention is being given to unity and a PWP
Congress at this point in the Udall Bill's life-cycle because of
friction encountered among the PD organizations while working for the
bill's passage. The friction is unfortunate, because, I would think,
Udall Bill implementation at a detailed level, along with efforts to
ensure appropriations, ought to be the focus right now. Is there too
much dissention now for this to occur?

It appears that we have little time. As I understand it, although
the Udall Bill "authorizes" $100 million for fiscal year 1998, plus
unspecified amounts for fiscal 1999 and 2000, all the NIH
appropriations for 1998 (which include an increase but do not include
the $100 million, because the latter was just authorized) have
already been made (in the Labor, Health and Human Services general
approprations bill which Congress just passed this November -- the
bill to which the Udall authorization was attached as an amendment).
I'm just beginning to learn about the federal budget process, and
it's my impression (correct me if I'm wrong) that authorized
programs generally receive appropriations after being included in
the President's budget. The President presents the 1999 budget to
Congress in January 1998.

It appears we missed getting the $100 million appropriated for 1998,
since it was just recently authorized. But unless the authorized
Udall measures are covered in the 1999 budget, won't we miss out on
1999 appropriations as well?

It would seem to me that you have a chance of getting a program into
the budget if it has a detailed blueprint along with support of the
President. I am aware that PAN is addressing the matter of 1999
appropriations, and that at some point we grassroots people will be
requested to do something. Are NPF, APDA, et. al. addressing this
as well?

Of course there are ongoing strategic issues which it is appropriate
for a PWP Congress to address. But do our activists have sufficient
time and energy for this now, when effort is needed to work for the
appropriations?

Phil Tompkins
Hoboken NJ
59/8

------------------------------

Date: Thu, 4 Dec 1997 00:14:56 -0500
From: KEn Becker <[log in to unmask]>
Subject: Re: Health for profit...

Judith, it is nice to know there is resistance to the "show me the money"
attitude.
Patients and their families should start asking questions before choosing
insurance and medical facilities. When you are suffering and need quick
treatment, there is usually no time to change things. Many employers giv=
e a
choice between plans that let you use a doctor of your choice, and those =
that
force you to use a doctor associated with the plan, and many require you =
to
see a that doctor before you get to see a specialist. I pay plenty for th=
e
right to choose any doctor, and I can save money by going to one on the
official list, but I feel that my health is too important to trust to
strangers! I'd rather use a doctor reccommended by a happy patient, tha=
n
one picked by the insurance company because he is willing to work "cheap"=
  or
would avoid reccommending proper treatments due to the cost factor. You
wouldn't take a Jaguar to a Yugo dealer for service to save a few bucks, =
 so
why risk your life and well being for money?? Ken B

------------------------------

Date: Thu, 4 Dec 1997 00:29:13 EST
From: Elf 808 <[log in to unmask]>
Subject: Re: NEWS: Getting Vitamin C on the Brain

Ron,
 If it's possiable would you mind sending more detailed info on "lipoic a=
cid"
....or directing me to a website that has real information about this sub=
stance
<can ya tell I don't wanna (unless I have to) scroll thru "try me, buy me=
"
ads> ... Thanks ... Elf in TN...Romona
 http://members.aol.com/elf808/index.html <---newbie webpage but it's i=
n
color <G>
Elf wife to Tony (my hero), and mom to Tori (age 9, nda), Zach (age 7,
multichallenged), Cory (age5, multichallenged). The boys have no definati=
ve Dx
but several labels... Ataxia,Nystagmus, Strubismus, Dystonia, Parkinsonis=
m,
Asthma, Execma, Hypotonia, Spasticity....ect Collectively the
Dystonia/Parkinsonism effects the boys from eyes to toes and progressing
steadily. Currently Cory & Zach are taking Sinemet, Lodosyn and Cory has =
had 4
rounds of Botox, uses a walker or WC for mobility.
In a message dated 97-12-03 15:54:18 EST, you write:

<<
 Why is everyone so concerned about getting Vit E and C to the brain. If=
 you
 think that antioxidants will help, just take lipoic acid. It not only
 reaches the brain, it has been shown to reach the substantia nigra. It =
is a
 very powerful antioxidant and it recycles E which recycles C.

 Plus it generates L-glutatione which is scarce in PD people. It also
 chelates Iron.

 Builds strong brains in 4 ways!

                         Ron Reiner (49/2) >>

------------------------------

Date: Wed, 3 Dec 1997 21:35:33 -0800
From: David Moreland <[log in to unmask]>
Subject: better than collagen

A few months ago I was very interested in a possible collagen injection f=
or
a temporary repair job for my vocal chords. Since then I have had speech
therapy. What my speech therapist did was have me do some neck exercises.
The result has been that my vocal chords have been built up naturally and=
 I
can continue with the exercises and my volume will continue to improve. =
I
have begun to sing more and now I am using Dragon Dictate both at home an=
d
at work. This will encourage me to enunciate more precicely. This should
help and my speech should continue to improve. This is just my experience
and I am excited about the way it is working so far. This takes some work
but I think it is worth while.


Yours and His

David L. Moreland, 54/10
[log in to unmask]

------------------------------

Date: Thu, 4 Dec 1997 00:44:40 -0500
From: KEn Becker <[log in to unmask]>
Subject: Re: I've learned...

Art, thanks for sharing that, it's like reading a month's worth of Ann
Landers columns in five minutes! Ken B

------------------------------

Date: Thu, 4 Dec 1997 01:34:36 -0500
From: Judith Richards <[log in to unmask]>
Subject: Gamma Knife May Replace Surgery For Parkinson's Patients

RSNA MEETING: Noninvasive Gamma Knife May Replace Surgery For Many Patien=
ts
With Parkinson's

CHICAGO, IL -- December 3, 1997 -- A noninvasive radiosurgical technique =
may
ultimately replace surgery for many patients with Parkinson's disease and
other movement disorders whose symptoms cannot be controlled by medicine,
according to results of a preliminary study presented today during the 83=
rd
Scientific Assembly and Annual Meeting of the Radiological Society of Nor=
th
America (RSNA).

"Stereotactic radiosurgery shows promise as an alternative to surgery to
relieve the uncontrolled movements that are characteristic of Parkinson's
disease and other movement disorders," said David Friedman, M.D. of
Philadelphia's Thomas Jefferson University Hospital.

The technique is performed with equipment called a gamma knife that uses
magnetic resonance (MR) imaging to identify the radiosurgical target. The
radiation destroys selected portions of the globus pallidus or the thalam=
us,
structures deep within the brain that are responsible for the tremors and
other involuntary movements that are characteristic of Parkinson's diseas=
e.

The surgical treatment for Parkinson's disease is to make a small hole in
the skull and place a probe into the brain which heats and destroys the
targeted tissue, according to Howard W. Goldman, M.D., Ph.D., professor a=
nd
vice chair, department of neurosurgery.

"Our study looked at the success with the gamma knife in patients who wer=
e
too old or ill to undergo surgery," Dr. Goldman said. "We've had such
success, we're now offering it as an alternative to other patients as wel=
l."

According to Dr. Goldman, as many as 50,000 patients in the United States
could benefit from the technique each year. "Nearly everyone with
Parkinson's disease eventually becomes refractory to pharmaceutical
treatment or develops side effects to medication, usually after five to
eight years of treatment," he said.

In the study reported by Dr. Friedman, 12 patients were treated with the
gamma knife. Seven patients showed marked improvement in their symptoms,
three had moderate improvement and two showed mild improvement with
follow-up of three months.

"With radiosurgery, it takes approximately six to eight weeks to begin to
see the effect of the treatment, according to Dr. Friedman. The results a=
t
three months were comparable to those achieved with surgery, he said.

Thalamotomy -- destruction of tissue in the thalamus -- is used to contro=
l
tremors. Pallidotomy -- destruction of tissue in the globus pallidus -- i=
s
used to control rigidity and larger involuntary movements, Dr. Friedman s=
aid.

The advantages of radiosurgical thalamotomy or pallidotomy with the gamma
knife compared to conventional surgery, according to Dr. Friedman and Dr.
Goldman are:

-- It is a noninvasive procedure without the risks of hemorrhage or
infection that are associated with open surgery. "The only adverse effect
seen with the gamma knife was late-onset swelling of brain tissue in two
patients that largely resolved over time," Dr. Friedman said. Swelling al=
so
can be a side effect of conventional surgery, Dr. Goldman said.

-- Patients are hospitalized for only 24 hours compared to three or more
days with surgery.

-- There is little or no recovery time. Recovery from surgery takes about
two weeks. "The effects of the gamma knife occur gradually, so we typical=
ly
don't see side effects such as weakness and confusion that sometimes occu=
r
immediately after surgery," Dr. Goldman said.

There are 90 gamma knife machines in use worldwide, 32 in the United Stat=
es.

------------------------------

Date: Thu, 4 Dec 1997 09:37:12 +0100
From: Piergiorgio Rena <[log in to unmask]>
Subject: R: New member

Dear Leonard

Thank You for Your welcome. Keep in touch and have a nice time.
Piergiorgio

> ----------
> Da: Fleurette Leonard[SMTP:[log in to unmask]]
> Inviato: venerd=EC 28 novembre 1997 16.59
> A: Multiple recipients of list PARKINSN
> Oggetto: Re: New member
>
> Peirgiorgio - Welcome to the List, and here's hoping we can help.
> Italy!
> Wow we are becoming truly international! Kind of you to want to help
> your
> father - keep in touch. Flo
>
>
>
> At 11:09 AM 11/28/97 +0100, you wrote:
> >Dear members
> >
> >Thank You for the welcome. My name is Piergiorgio Rena and I live in
> >Rivoli (close to Torino, Italy). I am 34 years old and I work at Fiat
> >Research Center: i deal with electric traction.
> >My father has been suffering from Parkinson disease since 1982 and he
> is
> >62 years old. Every Saturday morning we attend the meetings of the
> >support group organised by the local section of the AIP (Parkinson
> >Italian Association). The main purpose of this meeting is to provide,
> in
> >addition to the medication update, a psycological support to the
> >patients, in order to increase their self-confidence, their
> creativity:
> >in practice, to improve the quality of their lives.
> >I would like to know if there are other members involved in this type
> of
> >activities and which are their initiatives at the purpose.
> >I do not have a personal computer at home: I have to use my office PC
> so
> >I do not have so much time to write and to read the messages I get:
> in
> >any case I will do my best to make it!
> >Tomorrow mornig I will be busy as a receptionist at the annual
> meeting
> >organised in Torino by the Parkinson Italian Association.
> >My E-Mail adress is: [log in to unmask]
> >
> >Best regards to everyone
> >Piergiorgio Rena
> >
>

------------------------------

Date: Thu, 4 Dec 1997 09:42:14 +0100
From: Piergiorgio Rena <[log in to unmask]>
Subject: R: New member

Dear Leonard

Thank You for Your welcome.

> ----------
> Da: Fleurette Leonard[SMTP:[log in to unmask]]
> Inviato: venerd=EC 28 novembre 1997 16.59
> A: Multiple recipients of list PARKINSN
> Oggetto: Re: New member
>
> Peirgiorgio - Welcome to the List, and here's hoping we can help.
> Italy!
> Wow we are becoming truly international! Kind of you to want to help
> your
> father - keep in touch. Flo
>
>
>
> At 11:09 AM 11/28/97 +0100, you wrote:
> >Dear members
> >
> >Thank You for the welcome. My name is Piergiorgio Rena and I live in
> >Rivoli (close to Torino, Italy). I am 34 years old and I work at Fiat
> >Research Center: i deal with electric traction.
> >My father has been suffering from Parkinson disease since 1982 and he
> is
> >62 years old. Every Saturday morning we attend the meetings of the
> >support group organised by the local section of the AIP (Parkinson
> >Italian Association). The main purpose of this meeting is to provide,
> in
> >addition to the medication update, a psycological support to the
> >patients, in order to increase their self-confidence, their
> creativity:
> >in practice, to improve the quality of their lives.
> >I would like to know if there are other members involved in this type
> of
> >activities and which are their initiatives at the purpose.
> >I do not have a personal computer at home: I have to use my office PC
> so
> >I do not have so much time to write and to read the messages I get:
> in
> >any case I will do my best to make it!
> >Tomorrow mornig I will be busy as a receptionist at the annual
> meeting
> >organised in Torino by the Parkinson Italian Association.
> >My E-Mail adress is: [log in to unmask]
> >
> >Best regards to everyone
> >Piergiorgio Rena
> >
>

------------------------------

Date: Thu, 4 Dec 1997 03:55:52 EST
From: DeitzM <[log in to unmask]>
Subject: Re: HEADS UP =3D OTC Drugs & PD

BArb Mallut wrote

It's been so long since I've had a cold that I have no memories of ever t=
aking
Sudafed, but it's none-the-less one of those "household words," like aspi=
rin,
Tylenol, Alka Seltzer and other popular over-the-counter medications, and=
 I
suspect I'd had it 'round the house in the past, if not for myself, then =
when
my kids were growing up.

Because it was such a familiar drug, I never even so much as glanced at t=
he
"Warning" on the Sudafed box when I took the drug. Later on, I picked u=
p the
box to see how often the drug can be taken and THEN I casually read the
"Warning" on it. It said:

"Do not use this product is you are taking a prescription monoamine oxida=
se
inhibitor (MAO) (certain drugs for depression, psychiatric or emotional
conditions, or Parkinson's disease), or for 2 weeks after stopping the MA=
O
drug."

Barb

As an RN (non practicing but retain license in CA) I suggest that when ta=
king
OTC meds that you read the labels and precautions three times before
purchasing.

Helen

------------------------------

Date: Thu, 4 Dec 1997 04:27:05 -0500
From: digest Dale Severance <[log in to unmask]>
Subject: Requip Diary Days 8 thru 12 by Dale Severance

12/3/97 Day 8th thru 12th on requip

I have been so bad I could not keep up the diary. I have been frozen to t=
he
point I could barely initiate any action.
During this period I titrated up to 1 mg 3x a day and today starts 1mg 3x=
 a
day
I've slept most of the time the last 3-4 days letting the tiredness and
fatigue take its course. My freezing has effected my upper body more tha=
n
lower part but both effected.

I a woke at 4 am a little better than when I went to bed. Too tired to ty=
pe
more. Have apt. with social security examiner today at least they picked=
 a
good day for me to be a basket case at the time of my examination.
I am also having cramps in parts of body that did not previousy cramp suc=
h as
neck and right leg and hand. Today I am 57 and my wife has baked my favo=
rite
cake. Chocolate with 7 minute vinalia frosting

------------------------------

Date: Thu, 4 Dec 1997 07:12:22 -0400
From: janet paterson <[log in to unmask]>
Subject: dear

when we see how funny we are
we see how dear we are

        anne wilson schaef



janet [log in to unmask]

------------------------------

Date: Thu, 4 Dec 1997 07:33:48 -0500
From: Perry Sennewald <[log in to unmask]>
Subject: Re: BERNIE BARBER'S WP FILE CONVERTED TO TXT <fwd>

My compliments to the really cogent comments by Dr. Charles Meyer on
"unification" of PD organizations. I recognize that the author may have
been Dr. Bernie Barber; forgive me, as I may have not been able to sort
this out correctly given the many messages flying around on the subject
along with file conversion problems. My comments assume I am correct in
naming Dr. M as the author. Hopefully, some one will correct me if I am
wrong.

I am new to the list and have been off due to travel up until a week ago.
When I returned, I found all the many differing views on a subject that
came up while I was off the list. What was clear, however, was a certain
lack of clarity of purpose and an element of reality. Dr. Meyer has
provided that and more in my view - especially the reality check.

Allow me to provide just a bit of support for the thesis of an independen=
t
"Parkinson Information Exchange" as articulated by Dr. Meyer. I have had
just a brief exposure of about eight weeks[excluding my break of two week=
s
for travel]to the list. As a result, I have learned more about PD and it=
s
many characteristics, and how to manage it than I have from reading
materials and surfing the net. Please don't misunderstand; the latter tw=
o
are invaluable, but the PIE has allowed me as a new CG to begin to
integrate all the bits and pieces of data into a much better picture of P=
D
than otherwise would have been possible. For this I am appreciative of t=
he
existence of this list and the CG list. Kudos to all the folks that make
both possible.

I would offer only one minor critique of both lists: At times, informati=
on
is distributed that sometimes seems not to be terribly relevant to PWP, P=
D,
and to CGs. But then, as Dr. Meyer pointed out, that what democracy is a=
ll
about. I believe it was Winston Churchill who once said in effect:
democracy is a terrible system, but it sure beats all the alternatives.

Again, my compliments to Dr. Meyer for his thoughts and here's to an even
more effective PIE in the future.

                Perry Sennewald 69 new CG for Terry 70/0.25 [psennewald@m=
onmouth.com

------------------------------

Date: Thu, 4 Dec 1997 07:49:27 -0500
From: "Barbara A. Jarjoura" <[log in to unmask]>
Subject: Re: Requip Diary Days 8 thru 12 by Dale Severance

Good morning Dale,

You did indeed pick a good time to go to the SS.

I just wanted to let you know that Fuad went through a similar reaction, =
but
finally at week 6 with no Sinemet he is starting to improve. He is on 12=
 mg a
day 4 mg x 3 and is showing signs of overmedication.

The positive side is that his mind is clearer and he is able to do the ph=
ysical
therapy better. To help with the aches he has been taking Nuprin.

Try to hang in there if you can.

Barb
CG for Fuad (60) dx 4+ PD 25+

digest Dale Severance wrote:

> 12/3/97 Day 8th thru 12th on requip
>
> I have been so bad I could not keep up the diary. I have been frozen to=
 the
> point I could barely initiate any action.
> During this period I titrated up to 1 mg 3x a day and today starts 1mg =
3x a
> day
> I've slept most of the time the last 3-4 days letting the tiredness and
> fatigue take its course. My freezing has effected my upper body more t=
han
> lower part but both effected.
>
> I a woke at 4 am a little better than when I went to bed. Too tired to =
type
> more. Have apt. with social security examiner today at least they pick=
ed a
> good day for me to be a basket case at the time of my examination.
> I am also having cramps in parts of body that did not previousy cramp s=
uch as
> neck and right leg and hand. Today I am 57 and my wife has baked my fa=
vorite
> cake. Chocolate with 7 minute vinalia frosting

------------------------------

Date: Thu, 4 Dec 1997 07:57:51 -0500
From: "Barbara A. Jarjoura" <[log in to unmask]>
Subject: Re: Requip Diary Days 8 thru 12 by Dale Severance

HAPPY BIRTHDAY DALE!!!!!

digest Dale Severance wrote:

> 12/3/97 Day 8th thru 12th on requip
>
> I have been so bad I could not keep up the diary. I have been frozen to=
 the
> point I could barely initiate any action.
> During this period I titrated up to 1 mg 3x a day and today starts 1mg =
3x a
> day
> I've slept most of the time the last 3-4 days letting the tiredness and
> fatigue take its course. My freezing has effected my upper body more t=
han
> lower part but both effected.
>
> I a woke at 4 am a little better than when I went to bed. Too tired to =
type
> more. Have apt. with social security examiner today at least they pick=
ed a
> good day for me to be a basket case at the time of my examination.
> I am also having cramps in parts of body that did not previousy cramp s=
uch as
> neck and right leg and hand. Today I am 57 and my wife has baked my fa=
vorite
> cake. Chocolate with 7 minute vinalia frosting

------------------------------

Date: Thu, 4 Dec 1997 06:31:58 -0700
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Subject: Re: I've learned...

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Art -- thanks! this one made my day:


> I've learned that you can't hide a piece of broccoli in a glass of
> milk. Age 6



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fn: Kathrynne Holden, MS, RD
n: Holden, MS, RD;Kathrynne
org: Five Star Living, Inc.
adr: ;;;;;;USA
email;internet: [log in to unmask]
title: Registered Dietitian
tel;work: 970-493-6532
tel;fax: 970-493-6538
note: http://www.fortnet.org/~fivstar
x-mozilla-cpt: ;0
x-mozilla-html: TRUE
version: 2.1
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--------------FB466497E0491020A01616A9--

------------------------------

Date: Thu, 4 Dec 1997 22:43:10 +0700
From: David Havard <[log in to unmask]>
Subject: Re: Another Survey? Brian Collins et al

To Brian Collins and the five other respondents (thank you)

I guess that I was a bit naive to think that a survey would be easy to
organize. There have been only eight replies to the question and the
two negative (not that yours was directly negative Brian) replies cast
doubt on what I see as an essential base - a statistically valid
response (from the membership).
Given the obvious (the likelihood of a small and slow response), there
will not be enough time to organize, collate and analyze the data before
I lose the Internet connection. At this time, therefore, I regretfully
will not attempt to start a survey now.
In the few days since the original posting there have been several
questions from people concerning new agonists and other drugs. I am
still of the opinion that the concept of the survey is valid, but I
believe the amount of time I have available is insufficient to carry out
the survey. If people will support the survey I will try and organize
something in March and/or April when I am back on the Internet.
Brian, I agree with the three numbered suggestions set out below. If we
can get the required interest, I will be prepared to be proactive and
chase answers to get as near a valid sample as possible.
Thanks very much for your support and interest.

David



Brian Collins wrote:
>
> it is the> problem of the small number of responses that typically resu=
lt from such
> a survey. It seems reasonable to expect a response in the realm of 100 =
to
> 200 from the 1500 members of the list, and armed with that sort of data
> we might begin to get some useful information. I would suggest a few
> guidelines as follows:
>
> 1. Make the question(s) simple, unambiguous, and relevant
>
> 2 Phrase the question(s) in such a way that the answer(s) can be short
> and direct.
>
> 3 Get the support of some of the more regular contributors to the list:
> If they can stir their 'fan clubs' into action who knows - we might beg=
in
> to get somewhere. I suspect that if we could get one large-scale respo=
nse,
> and show the potential of 'people-power' it may begin to snowball into =
a
> really useful service. - How many neurologists have access to 1500
> potential responders ?
>
> Re: the second opinion request, I am prepared to do this (Of course, I =
may
> not agree with your findings, but I assume that you are prepared for th=
is).
>
> Regards,
> --
> Brian Collins <[log in to unmask]>

------------------------------

Date: Thu, 4 Dec 1997 10:32:28 -0500
From: Judith Richards <[log in to unmask]>
Subject: FW: Elizabeth Butler

Sorry for posting private mail to the List, but I've had my post to
Elizabeth returned twice...

>Hi Liz,
>
>Here's the info you wanted. There is a nice "thank you" note from Johnny
Cash on his web site to all his fans.

>http://www.johnnycash.com
>
>CASH, An Autobiography
>
>"This book will be my whole story =97 what I feel, what I love, what's
happened, as I remember it. It's time to cut through some of the rumors.
>If my life has anything to say, I'll say it here."
>
>Johnny Cash celebrates sixty-five years and his remarkably varied career=
 in
a riveting autobiography =97 telling it straight =97 in his own words. CA=
SH: The
Autobiography (a HarperSanFrancisco Hardcover/October 15, 1997/$25.00), i=
s
co-authored with Patrick Carr, contributing editor of Country Music magaz=
ine.
>
>Here, Cash tells the whole story: from his roots on an Arkansas cotton f=
arm
to his first public performance during an Air Force stint in Germany; the
Sun Records era of the '50s, when he worked with Elvis and Carl Perkins, =
to
the amphetamine-laced '60s; his marriage to June Carter; the "supertar"
years when he had his own TV show; his treatment for addiction and spirit=
ual
>revival and exciting comeback. He relates the traumatic experiences of h=
is
life, such as the death of his older brother and the violent robbery at h=
is
home in Jamaica. Cash also reflects on the family and spirituality that i=
s
central to his life and recalls associations with Jerry Lee lewis, Elvis,
Bob Dylan and many others, including presidents from Nixon to Clinton.
>
>"I love the road, I love being a gypsy. In some important ways I live fo=
r
it, and in other ways it keeps me alive," says Cash. "If I couldn't keep
traveling the world and singing my songs to real live people who want to
hear them, I think I might just sit myslf down in front of a TV and start=
 to
die ... For ultimately, even with its little hardships and major challeng=
es,
that's what the road really means to me. It's adventure, companionship,
creativity, freedom. It's the voice of a very old, beloved friend, perhap=
s a
boy back in Arkansas or a young man in Memphis, still fresh and clear
despite years, calling: 'Come on, J.R., let's go play!' "
>
>Full of never-before-published photos, his epic story offers the unique
perspective of a legend reflecting on his own life and a fascinating blen=
d
of passion, honesty, humor, insight, and inspiring faith. With enormous
appeal for fans both old and new, CASH captures the voice of this America=
n icon.
>
>Order your copy today by e-mailing us with your credit card information =
or
by calling 1-800-996-3977!
>
>About the authors: Born in Kingsland, Arkansas, Johnny Cash is the only
musician to be inducted into the Songwriter's Hall of Fame, the Country
Music Hall of Fame, and the Rock and Roll Hall, and is one of only a hand=
ful
of entertainers to sell more than 50 million records. Cash lives with his
wife and longtime singing parterner June Carter Cash in Hendersonville,
Tennessee. Patrick Carr has covered the rock and country music scenes for
Rolling Stone, the New York Times, Village Voice and Playboy. The editor =
of
The Illustrated History of Country Music, and coauthor, with Angela Bowie=
,
of Backstage Passes: Life on the Wild Side with David Bowie, he lives in
Tampla, FL.
>
>Copyright 1997 Odyssey Publications. Updated 10/20/97
>
>At 02:35 04/12/97 +1000, Elizabeth Butler wrote:
>>Hi Judith
>>Saw your list post re Johnny Cash and wondered whether you could help m=
e
>>with a question from one of our support group members. I did try to po=
st
>>to the list but seem to have messed that up somehow.
>>Do you know if there has been an autobiography published and if so coul=
d
>>you send me details please.
>>Cheers
>>Elizabeth Butler
>>aka ^yak^ on #parkinsons
>>Gold Coast Australia

------------------------------

Date: Thu, 4 Dec 1997 12:26:08 -0500
From: Richard Henderson <[log in to unmask]>
Subject: Re: PMID: 9371905: Olfactory dysfunction in familial PD 27/0 USA=
 -Reply

The efficiency of the nasal plasters(across the bridge of the nose) is
certainly guarenteed as many sportsmen/women wear them to increase
the flow of air into the lungs; they also come in a flesh colour. However=
,
wearing one in public may make you look as if youve accidently cut your
nose while shaving!

------------------------------

Date: Thu, 4 Dec 1997 10:37:53 -0800
From: "J. R. Bruman" <[log in to unmask]>
Subject: CSRINDX DEC 97 Part 2 of 2

" " J Neur N'surg Psych 1996;61:634-637 Aug 96
     " " Mov Disord 1997;12:103-106 Feb 97
     " " Ann Neur 1997;42:245-248 Sep 97
     " " Neur 1997;49:438-444 Oct 97
     " " Ann Neur 1997;42:349-355 Oct 97
     " " Clin Neuropharm 1997;20:394-401 Dec 97
     " " Clin Neuropharm 1997;20:409-418 Dec 97
     " ethylester Ann Neur 1996;39:400-404 Apr 96
     " metabolism Ann Neur 1997;42:300-304 Oct 97
     " strategy Ann Neur 1995;38:389-395 Oct 95
     " " J Neur N'surg Psych 1995;59:555 Dec 95
     " " Neur 1996;47:Supp 3 Feb 97
     " " Neur 1997;49:711-713 Oct 97
     " toxicity Mov Disord 1997;12:634-638 Nov 97
Lewy body disease J Neur N'surg Psych 1996;60:531-538 Jun 96
     " Neur 1996;47:462-466 Sep 96
     " Neur 1997;48:376-380 Mar 97
     " Science News 18 Oct 1997:255 Nov 97
Liquid Sinemet Neur 1996;47:1493-1495 Feb 97
Locus coeruleus Brain 1995;118:131-143 Jun 95
Machado-Joseph Ann Neur 1995;38:684-687 Nov 95
Macrophage Science News 21 Sep 96:180 Oct 96
Magnetic stimulation Brain 1996;119:71-77 May 96
     " Brain 1996;119:815-822 Sep 96
     " Ann Neur 1996;40:344-355 Oct 96
     " Brain 1997;120:1587-1602 Nov 97
MAO inhibition, effect J Neurosci 1997;17:2267-2272 May 97
MAO-B Neur 1996;46:1262-1269 Jun 96
     " Ann Neur 1996;40:99-107 Aug 96
Markers, neurochemical Neur 1996;47:718-726 Oct 96
     " " Mov Disord 1997;12:167-174 May 97
     " " Ann Neur 1997;41;530-539 May 97
Melatonin BMJ 18 May 96:1242-43 Jun 96
     " , antioxidant J Neurosci 1997;17:1683-1690 Apr 97
Memory, Hippocampus Science News 7 Sep 1996:150 Oct 96
Memory and PD Science 6 Sep 96:1263-64 Oct 96
     " Science 6 Sep 96:1399-02 Oct 96
     " J Neur N'surg Psych 1997;62:410-413 Jun 97
Menstrual effects Neur 1995;45:1028 Jul 95
     " Mov Disord 1993;8:240-241 Nov 95
Metaclopramide (Reglan)JAMA 1995;274:1780-82 Jan 96
Metals, exposure to Neur 1997;48:650-658 Apr 97
Methylsalsolinol Ann Neur 1996;40:119-122 Aug 96
Metronome Lancet 11 May 1996:1337 Jun 96
Migraine, DA and Clin Neuropharm 1997;20:36-41 May 97
Mimics of PD Arch Neur 1995;58:294-298 Oct 95
     " Brain 1995;118:951-958 Oct 95
     " BMJ 16 Mar 1996:724 Apr 96
Mitochondria Science News 5 Aug 1995;84 Sep 95
     " Neur 1995;45:2097-2099 Feb 96
     " Mov Disord 1997;12:3-16 Feb 97
     " Mov Disord 1997;12:639-645 Nov 97
Mortality J Neur N'surg Psych 1995;58:293-299 Apr 95
     " Arch Neur 1997;54:260-264 Apr 97
Motor cognition Brain 1997;120:1339-53 Oct 97
  " " Brain 1997;120:1355-75 Oct 97
  " fluctuations J Neur N'surg Psych 1996;61:634-637 Aug 96
  " skill learning Brain 1997;120:1325-37 Oct 97
Movement, head and eye Ann Neur 1996;39:749-760 Jul 96
  " , coordinated Brain 1997;120:91-102 Apr 97
  " , " Brain 1997;120:593-604 Jun 97
  " , " Brain 1997;120:963-976 Aug 97
  " , " Mov Disord 1997;12:665-676 Nov 97
  " , " Mov Disord 1997;12:646-654 Nov 97
  " , " Brain 1997;120:2093-111 Dec 97
  " , diagnostic Arch Neur 1997;54:450-454 May 97
  " , guidance Brain 1997;120:977-990 Aug 97
MPTP Ann Neur 1994;36:765-770 Dec 94
  " J Neurosci 1996;16:7776-7782 Jan 97
  " Neur 1996;47:Supp 3 Feb 97
Multiple System AtrophyAnn Neur 1995;37:204-210 Mar 95
     " J Neur N'surg Psych 1995;59:144-151 Sep 95
     " Clin Neuropharm 1997;20:239-244 Sep 97
Muscle, sound from Lancet 22 Feb 97;533-535 Apr 97
Nerve Growth Factor J Neurosurg 1996;84:685-689 Apr 96
     " J Neurosci 1996;16:5437-5442 Nov 96
     " J Neurosci 1996;16:6433-6442 Nov 96
     " J Neurosurg 1997;86:511-518 Jul 97
     " and diabetes Lancet 19 Oct 96:1044-45 Nov 96
Neuroleptics (risk) J Neur N'surg Psych 1996;60:213-216 Mar 96
Neuropeptides Brain 1996;119:823-830 Sep 96
Neurosciences Inst. Science 27 Oct 1995:572 Dec 95
Neurotrophic factors Ann Neur 1996;40:346 Oct 96
     " problems Nat Med 1997;3:497 Jul 97
     " (BDNF) J Neurosci 1997;17:2295-2313 May 97
Neurotrophic (GDNF) WSJ 21 Mar 1996: Apr 96
     " N Neurosci 1996;16:8132-8139 Jan 97
NMDA antagonist J Neurosci 1996;16:4231-39 Nov 96
     " J Neurosci 1997;17:2921-2927 May 97
Nurr-1 Science 11 Apr 97:248-50 May 97
     " , editorial Science 11 Apr 97:202 May 97
Nutrients and PD Neur 1996;47:644-650 Oct 96
Olfaction and PD J Neur N'surg Psych 1997;62:436-446 Jul 97
Ondansetron (Zofran) Neur 1995;45:1305-1308 Oct 95
     " Neur 1996;47:1608-1609 Feb 97
     " , for tremor J Neur N'Surg Psych 1997;62:282-284 Apr 97
On-off effect J Neur N'surg Psych 1995;59:555 Dec 95
     " J Neur N'surg Psych 1996;61:634-637 Aug 96
Onset, early vs late Mov Disord 1997;12:277-284 Aug 97
Oxidative stress Neur 1995;45S3:55 May 95
     " J Neur N'surg Psych 1995;59:90-91 Aug 95
     " Ann Neur 1996;39:378-381 Apr 96
Pallidopyramidal Ann Neur 1995;38:954-956 Feb 96
Pallidotomy, boom in WSJ 22 Feb 95:1 Mar 95
     " , benefits Neur 1995;45:753-761 Jun 96
     " , " Lancet 25 May 96;1490 Jul 96
     " , " Ann Neur 1996;39:826 Jul 96
     " , " J Neur N'surg Psych 1997;62:125-132 Apr 97
     " , " Lancet 15 Mar 1997:777 Apr 97
     " , " Neur 1997;48:1273-1277 Jun 97
     " , " Ann Neur 1997;41:834 Jul 97
     " , " Arch Neur 1997;54:1026-1029 Oct 97
     " , " J Neurosurg 1997;87:358-367 Oct 97
     " , " Neur 1997;49:1072-1077 Nov 97
     " , cognition Arch Neur 1997;54:947-950 Sep 97
     " and DBS Nat Med 1997;3:671-674 Jul 97
     " " Nat Med 1997;3:602-603 Jul 97
     " " Neur 1997;49;1078-1083 Nov 97
     " , effects J Neur N'surg Psych 1997;63:150-162 Oct 97
     " , gamma knife Ann Neur 1996;39:535-538 Jun 96
     " , history Ann Neur 1996;40:341-343 Oct 96
     " , low-cost Brain 1997;120:729-737 Jul 97
     " , PET scan Ann Neur 1995;37:776-783 Jul 95
     " , " Ann Neur 1996;39:450-459 Jun 96
     " , " Brain 1997;120:1301-13 Oct
97 " , " Brain 1997;120:1315-24 Oct
97
     " , success Ann Neur 1996;40:355-366 Oct 96
     " , " Neur 1997;1083-1090 Nov 97
     " , " Mov Disord 1997;12:752-755 Nov 97
     " , technique J Neurosurg 1996;84:194-202 Jul 96
     " , " J Neurosurg 1996;85:1005-1012 Jan 97
     " , " J Neurosurg 1997:87:52-59 Aug 97
Paroxetine (Paxil) Neur 1994;44:2406 Jan 95
Pathways, neural Neur 1995;45S3:S28-S34 May 95
     " Neur 1996;1032-1036 Nov 96
Perception, auditory Mov Disord 1997;12:655-664 Nov 97
     " , visual Brain 1996;119:79-87 May 96
Pergolide (Permax) Neur 1995;45S3:S5 May 95
     " Neur 1995;45S3:S13-S21 May 95
     " Neur 1995;45S3:S22-S27 May 95
     " Mov Disord 1997;12:402-407 Aug 97
Personality and PD Lancet 15 Feb 97:478 Mar 97
PET diagnosis Ann Neur 1994;36:759-764 Dec 94
     " Ann Neur 1994;2:176-182 Dec 94
     " J Neur N'surg Psych 1995;59:597-600 Jan 96
     " Neur 1995;45:1995-2004 Feb 96
     " Ann Neur 1996;39:450-459 Jun 96
     " Neur 1996;46:1430-1436 Jun 96
     " Neur 1996;46:1200-1205 Jun 96
     " Ann Neur 1996;39:650-658 Jun 96
     " Brain 1996;119:585-591 Jul 96
     " Neur 1996;47:462-466 Sep 96
     " Ann Neur 1996;40:873-884 Mar 97
     " Ann Neur 1997;41:58-64 Mar 97
  " scans, questioned Science 11 Apr 97:196-198 May 97
Pituitary, effects on Clin Neuropharm 1996;19(1):72-80 Dec 97
Porphyria and PD drugs J Neur N'surg Psych 1997;62:562 Jul 97
Post-encephalitis PD Ann Neur 1997;42:356-359 Oct 97
Pramipexole PDF Newsletter Spr 1996:1 Apr 96
     " JAMA 9 Jul 87:125-130 Aug 97
     " Neur 1997;49:162-168 Aug 97
     " Neur 1997;49:724-728 Oct 97
     " Neur 1997;49:1060-1065 Nov 97
Prevalence J Neur N'surg Psych 1997;62:10-15 Mar 97
Prions Science News 13 Apr 1996;228 May 96
Progenitor cells Eng. & Sci Sept 95:26 Nov 95
Progression (case hist)NEJM 1996;334:116-118 Feb 96
     " JAMA 6 Mar 1996:716 Apr 96
     " JAMA 9 Oct 1196;1171 Nov 96
     " , in putamen Brain 1996;119:2097-103 Mar 97
Progressive Supranuc. J Neur N'surg Psych 1996;60:589 Jun 96
     " J Neur N'surg Psych 1996;61:615-620 Aug 96
     " Neur 1996;47:1-9 Sep 96
     " Neur 1996;47:148-154 Sep 96
     " Brain 1997;120:65-74 Apr 97
     " Arch Neur 1997;54:1104-1108 Oct 97
Propranolol (Inderal) Neur 1996;46:1548-1551 Jul 96
Propath program Arch Neur 1996;53:881-884 Oct 96
Proton Magnetic Res. J Neur N'Surg Psych 1997;62:239-242 Apr 97
Prozac (fluoxetine) Neur 1995;45:1855-1858 Nov 95
Psychogenic PD Arch Neur 1995;52:802-810 Sep 95
Quality of life J Neur N'surg Psych 1996;61:71-74 Aug 96
Raclopride, in PET Mov Disord 1997;12:33-38 Feb 97
Rapid-onset Neur 1997;49:1066-1069 May 97
Rating scale, clinical Clin Neuropharm 1997;20:183-184 Sep 97
     " " Clin Neuropharm 1997;20:322-327 Sep 97
Reaction time J Neur N'surg Psych 1995;59:499-506 Dec 95
     " Brain 1996;119:1689-1704Jan 97
Reflex blink, and PD J Neurosci 1996;16:7308-7330 Dec 96
Regeneration, brain Lancet 16 Mar 1996:751 Apr 96
     " Science News 21 Sep 1996:180 Oct 96
     " Science 28 Feb 97;1318-19 Apr 97
     " , spinal cord Lancet 21 Sep 1996:814 Oct 96
Registry (surveys) Neur 1995;45:1991-1995 Feb 96
     " NEJM 1996;334:71-76 Feb 96
     " Neur 1995;45:2143-2146 Feb 96
     " Arch Neur 1996;53:66-71 Feb 96
Research priorities JAMA 25 Oct 95:1257-8 Nov 95
Response time, levodopaNeur 1996;46:1055-1058 Jun 96
     " Neur 1996;46:1059-1062 Jun 96
Restless leg syndrome JAMA 17 Jan 1996: Feb 96
     " Neur 1996;47:1435-1441 Feb 97
     " Clin Neuropharm 1997;20:148-151 May 97
     " Mov Disord 1997;12:402-407 Aug 97
Rigidity Mov Disord 1997;12:24-32 Feb 97
Risperidone Mov Disord 1997;12:119-121 Feb 97
     " Mov Disord 1997;12:610-612 Sep 97
Ropinirole Neur 1997;49:393-399 Oct 97
Salsolinol Ann Neur 1996;40:119-122 Aug 96
Selegiline, amphetamineLancet 1995;346:64 Oct 95
     " , and AD NEJM 14 Apr 97:1216-22 May 97
     " , benefits Ann Neur 1995;37:95-98 Feb 95
     " , " Mov Disord 1997;12:175-182 May 97
     " , " Ann Neur 1997;41:833-834 Jul 97
     " , DATATOP Arch Neur 1995;52:237-245 Apr 95
     " , " Arch Neur 1995;52:564-570 Nov 95
     " , " Ann Neur 1996;39:37-45 Mar 96
     " , " Ann Neur 1996;39:29-36 Mar 96
     " , dosage Mov Disord 1997;12:293-296 Aug 97
     " , in favor of PDF Newsletter Spr 1996:2 Apr 96
     " , PET scan Ann Neur 1994;36:759-764 Dec 94
     " , pro and con BMJ 16 Mar 96:702-705 Apr 96
     " , " " " Ann Neur 1996;40:266-269 Sep 96
     " , " " " Ann Neur 1997;41:282-283 Mar 97
     " , protection by Ann Neur 1995;38:771-777 Jan 96
     " , " J Neurochem 1997;68:33-39 Aug 97
     " , " J Neurochem 1997;68:434-436 Aug 97
     " , risks of BMJ 16 Dec 95:1602-7 Jan 96
     " , " Ann Neur 1996;40:841-845 Mar 97
     " , " Neur 1997;48:662-667 Apr 97
     " , " Clin Neuropharm 1997;20:276-278 Sep 97
     " , " J Neur N'surg Psych 1997;63:228-234 Oct 97
     ", special review Neur 1996;47:Supp 3 Feb 97
Serotonin agonist Neur 1997;49:1168-1170 Nov 97
     " " Mov Disord 1997;12:756-759 Nov 97
     " antagonist Clin Neuropharm 1997;20:300-310 Sep 97
     " syndrome Neur 1997;48:1070-1077 Mar 97
Sertoli cells Nat Med 1997;3:1129-1132 Nov 97
Shy-Drager Ann Neur 1995;37:204-210 Mar 95
Sinemet, dissolved Mov Disord 1997;12:608-610 Sep 97
Sinemet CR J Neur N'surg Psych 1995;58:ad Jul 95
     " Lancet 11 Nov 1995;1290 Dec 05
     " Mov Disord 1997;12:677-681 Nov 97
Sjogren's syndrome Mov Disord 1997;12:121-123 Feb 97
Sleep, violence in Lancet 19 Apr 97;1150 Jun 97
  " , benefit Mov Disord 1997;12:506-508 Sep 97
Smell, loss of J Neur N'surg Psych 1997;62:436-446 Jul 97
Smoking and PD Neur 1995;45:1041 Sep 95
     " Neur 1995;58:294-298 Oct 95
     " Time 11 Mar 1996:60 Apr 96
     " Lancet 24 Feb 1996:527 Apr 96
     " Ann Neur 1996;39:378-381 Apr 96
     " Neur 1996;46:1275-1284 Jun 96
SPECT, diagnosis by Neur 1996;46:278-285 Apr 96
     " Neur 1996;46:231-237 Apr 96
     " Brain 1997;120:103-110 Apr 97
     " J Neur N'surg Psych 1997;62:133-140 Apr 97
Speech therapy Neur 1996;47:1496-1504 Feb 97
Stem cells, cultured Science News 19 Jul 97:36 Aug 97
     " , review of Science 4 Apr 1997:66-71 May 97
Stereotactic J Neurosurg 1995;83:197-205 Aug 95
     " Science News 30 Mar 1996:204 Apr 96
Stimulation, chronic Neur 1996;46:1150-1153 Jun 96
     " Arch Neur 1996;53:898-903 Oct 96
     " Neur 1997;49:1078-1083 Nov 97
Strategy, summary Clin Neuropharm 1997;20:95-115 May 97
Strength, arm Ann Neur 1996;39:79-88 Mar 96
     " Brain 1997;120:401-408 Jun 97
Striatonigral degener- Neur 1996;47:1032-1036 Nov 96
Stroke, help from Mov Disord 1997;12:124-126 Feb 97
   " , adverse effect J Neur N'surg Psych 1997;62:288-289 Apr 97
   " , " Neur 1997;49:707-710 Oct 97
   " , " Nat Med 1997;3:1129-1132 Nov 97
Surgery, summary J Neur N'surg Psych 1997;62:2-8 Mar 97
Swallowing Neur 1997;48:373-375 Mar 97
    " Mov Disord 1977;12:322-327 Aug 97
Sweats, control of Ann Neur 1995;37:120-122 Mar 95
Symmetrel (Amantadine) Neur 1996;46:1551-1556 Jul 96
Tachyphemia Mov Disord 1997;12:302-305 Aug 97
Tacrine, PD symptoms J Neur N'surg Psych 1996;61:324-325 Oct 96
Tactile acuity Neur 1997;49:168-177 Aug 97
Tardive dyskinesia Mov Disord 1997;12:119-121 Feb 97
    " " , and PVP Lancet 15 Mar 1997:777 Apr 97
Terguride Clin Neuropharm 1996;19(1):72-80 Dec 97
Tetanus shot caused J Neur N'surg Psych 1997;63:258 Oct 97
Thalamotomy J Neur N'surg Psych 1996;60:564-571 Jun 96
     " Brain 1996;119:1717-27 Jan 97
     " Ann Neur 1997;41:108-111 Mar 97
Thalamus, and tremor Neur 1996;46:75-79 Mar 96
     " Neur 1996;46:1150-1153 Jun 96
Therapy, tutorial Western J Med 1994;161:303-308 Jul 96
     " Postgrad Med 1996;99:52-68 Jul 96
     " Sci Amer Medicine Part 11, Chap XV Dec 97
Time, judgement of Science News 17 Feb 1996:101 Mar 96
     " Brain 1996;119:51-70 May 96
Tolcapone Neur 1997;48:81-87 Feb 97
     " Lancet 6 Sep 1997:712 Oct 97
     " J Neur N'surg Psych 1997;63:421-428 Nov 97
     " Neur 1997;1066-1071 Nov 97
Tourette Syndrome Mov Disord 1997:12:402-407 Aug 97
Toxins, Environmental Ann Neur 1994;36:765-770 Dec 94
     " Neur 1995;45:435-439 Apr 95
     " Neur 1995'45:2112 Feb 96
     " Neur 1997;48:1583-1588 Jul 97
Tracking, visual Brain 1995;118:485-493 Jul 95
Transcranial mag. stim J Neurosci 1997;17:3178-3184 May 97
     " Mov Disord 1997;12:315-321 Aug 97
Tremor, resting PD Neur 1996;46:1359-1370 Jun 96
     ", cerebellar J Neur N'surg Psych 1997;62:282-284 Apr 97
     ", surgery for J Neurosurg 1997;86:642-647 May 97
Ubiquitin Brain 1995;118:1447-49 Feb 96
Urinary dysfunction J Neur N'surg Psych 1997;62:507-511 Jul 97
     " " Mov Disord 1997;12:509-513 Sep 97
Valproate Neur 1996;47:626-635 Oct 96
Visual perception Brain 1996;119:79-87 May 96
Vision abnormality Neur 1995;45:1144-1148 Oct 95
Visuospatial attention Brain 1995;118:153-166 Jun 95
Weight loss Neur 1997;48:88-91 Feb 97
Wine and dementia BMJ 5 Apr 97:997 May 97
Young onset Neur 1996;47:225-230 Sep 96
   " " Mov Disord 1997;12:277-284 Aug 97
Zolpidem Lancet 26 Apr 97:1222-23 Jun 97
    " Lancet 5 Jul 97:74 Aug 97

 J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013

------------------------------

End of PARKINSN Digest - 3 Dec 1997 to 4 Dec 1997 - Special issue
*****************************************************************


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