> Dear listserve members,
>
> Unfortunately, (or fortunately, depending on how you look at it) I was behind
> on reading the posts to the list after I had made a post.  I have since gotten
> the "gist" from these posts such as this one from Arthur Hirsch:
>
> >I'm with Barb.  Tami may not have any Material Interest, but we don't know
> >and we've seen just too many people try to use this list for commercial
> >purposes.  If Tami is just one of us, means only to help, and has no profit
> >motive except the eradication of Parkinson's from her life, we'll know
> >sooner or later.  In the meantime, we're suspicious.
>
> >>Art
> >Arthur Hirsch [] [log in to unmask] [] Lewisville, TX
>
> Well, I'd like to say SHAME ON YOU BOTH.  Both you and Barb.  What the heck is
> the matter with you people.  Never, never in my post did I say go to that web
> site and buy their product.  I posted my message in response to Carol Phelps'
> who was looking for an inexpensive source for NADH.
>
> I gave the source I order from for my 40 year old husband, who has had
> Parkinson's for at least 3 years.  YEAH, I MADE THAT UP!  The tears I've shed
> and the despair I feel frequently regarding this crappy disease -- yep all
> made up.  Oh yes, I just thought I would share a mailorder vitamin/supplement
> source with all of you, because if you can save money of a very promising
> supplement such as NADH, well then, I must be getting what -- a kickback from
> the company.  Come on!  Do you have stones in your head?
>
> Before you go flamming someone, and getting someone really, really upset (who
> doesn't need anymore stress/upset in her life), why don't you check out the
> source given first for yourself.  Did you bother to call the company I listed
> as having a great deal on NADH -- buy one get the second bottle for a bottle
> -- yourself to check them out?  Did you call and ask if they give kickbacks if
> you recommend them?  Did you call to ask about this deal they call BOGO?
> Obviously you did not.
>
> So, I hope you both have your tails between your legs.  I understand all about
> multi-level junk going on on the internet, etc.  Fine, you eere on the side of
> caution.  That should be until you check it out first hand yourself.  Then, if
> you discover someone has a multi-level plan going on, then I suppose you could
> post your tremendous discovery on the listserve.  However, you both just
> decided to shoot your bullets at me without making any effort to discover if
> this was a legitimate source or not.  How could you do this to me?
>
> I need support, and thought I could find it here.  Hmm, I'm certainly
> evaluating that assumption on my part!  And regarding my post, I think you
> also did not fully read it before you put your blinders on.  I gave the web
> address:  www.nadh.com merely as a place for someone to go to get some general
> info on NADH, if they were not familiar with this supplement.  I never
> suggested anyone buy the brand touted there.  I gave the company JBN as the
> source to buy from, as they sell NADH much cheaper than that web site.
>
> So, after reading my post, how did you come to the conclusion that I made up
> my husband's illness, am a lier, and have material gain as my ultimate
> motivation?  This absolutely was not how my post reads.  I think you both
> better be sure to wear your glasses next time you read the posts!  Maybe you
> better start taking NADH to fire up your neurons!
>
> I don't know how I can ever post anything here again, or continue to read this
> listserve if I have to look over my shoulder to see if someone is going to rip
> me apart for trying to share valid information with the rest of you.
>
> As I stated in my post, I'm a medical researcher, writer, and herbalist.  The
> supplements I have my husband take have helped him greatly.  He has not been
> sick in over a year.  His symptoms are very managable at this point.  He feels
> good.  I just want to help other people to feel good again, or better than
> they do.  We are a success story for the moment.  I myself, lost 45 pounds
> last year, and have kept it off for a year and a half.  Let's see, I take L-
> Tyrosine to help with food cravings ... oops, ... I must be trying to sell
> that supplement to make a few lousy bucks off unsuspecting poor souls ... yep,
> I have a material interest in ALL manufactures who produce L-Tyrosine --
> beware!
>
> As for the question regarding the enteric coating to the tablets of NADH by
> Metabolic  Response Modifiers -- yes, this keeps the product stable.  That was
> my whole point.  Sorry if this wasn't clear.  The web site claims their brand
> is the only reliable brand to use.  That is hogwash.  They have a patent
> pending, so of course they make this claim.  However, if the product is
> enteric coated, it is stablized.  I mentioned the coating so anyone interested
> in ordering from JBN would know they are getting a comparable product.
>
> Well, I feel better now getting this off my chest.  I hope "certain people"
> will evaluate their remarks and do their reseach before deliberately hurting
> someone and causing much duress.  If I've upset either of you -- sorry -- but
> I really think you needed to be set straight so you don't do this to someone
> else.  Why not remember the reason for this listserve in the first place ...
> to serve its readers by offering support and hope and the FREE EXCHANGE of
> helpful information.
>
> So gee Arthur and Barb, do you see me yet as "one of us?"  Perhaps I see you
> both as a bit "shortsighted," in which case, I don't care to be "one of us."
>
> Walking tall through the listserve,
>
> Tami A.
>
  Hi Tami
  Please dont get too upset . I too was flamed on the list . I was
accused of living in a paranoid X file nightmare . In my posting I
was trying to describe a Kafka style nightmare of endless queues,
waiting for appointments, waiting for information trying to get tests
and medecine in a medical system with a very elaborate proceedure
that was grinding to a halt with lack of finance . This lack of
finance means that medical treatement has been reduced while the
increase in size of queues of people waiting for medical treatement
has meant more money and time being spent on this managing queue
beaurocracy . Judging by people I talk to and the long queues at the
hospitals I am not alone in this Kafkaesque nightmare .    Of course
everything could just be a PD hallucination !!

The list/internet provides a way out of this nightmare by providing
information and medical services .
As I have mentioned in previous postings this list could increase its
benefit to PD sufferers by surveying products and bulk cheap buying
of products . I am in week 2 of my personal trial of NADH . When I
have finished I will try and conduct a survey . ( In about 1 week ) .
  I feel you, Tami  could provide the service of being the bulk/cheap buyer
of products for members of this list . I live  in rural NE Scotland
and my access to any non standard product is limited . I bought my
NADH on the internet at a higher price than your price .
  Nobody HATES money more than I do ( the root of all evil ) . We are
at present stuck with it and must use it in ways that do the most
good ( or least damage ) . If someone made a few dollars out of
supplying pwps with products that they wanted to buy at cheaper
prices than anywhere else on the net , then good luck to that person
.
 So Tami  there is a need for someone on the list to find and supply
the cheapest products for pwps .  Just as there is a need for surveys
of these  products . I will try and start the ball rolling with an
attempt to survey NADH.( This will require other peoples cooperation
which might not be there ) .A person suuplying products will have to
accept credit cards and send products internationally .
     Tami, ignore the flamers and go forward with actions that help
people .
    keep walking tall

     peace
          Alastair     ( [log in to unmask] )