65//48/47 Dick (my husband)/CA

>From [log in to unmask] Tue Oct  6 08:55:21 1998
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>Message-ID: <005201be074c$06c2ef20$c415dacf@pavilion>
>Date:  Tue, 3 Nov 1998 09:04:31 -0800
>Reply-To: Parkinson's Information Exchange
<[log in to unmask]>
>Sender: Parkinson's Information Exchange
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>From:  Sharon Starr <[log in to unmask]>
>Subject:      Re: Identification
>To:    Multiple recipients of list PARKINSN
<[log in to unmask]>
>
>Opinion:  Believe it important for the sake of research (and therefore,
>diagnosis and cure) to indicate when symptoms first appeared, to the
best of
>our ability.  Would like to see current age/diagnosed age/first noticed
>symtoms age.  Name and town is a good idea, too.   :)
>Sharon Starr    Florence, AZ    My mom (Rae) (lives with us) is the
pwp:
>74/50/45
>
>-----Original Message-----
>From: Hawkins, Darwin <[log in to unmask]>
>To: Multiple recipients of list PARKINSN
<[log in to unmask]>
>Date: Monday, October 05, 1998 8:16 AM
>Subject: Re: Identification
>
>
>>Alright people, let's get serious and realize the situation some of us
>>older folks are in. I have a hard time remembering how I was feeling
>>last week, much less how many years symptoms would come and go before
I
>>was diagnosed.
>>
>>We are getting entirely too "cutesy" with a lot of the repetitive info
>>such as signatures and ID's.
>>
>>Go back and read the post a few months ago about how many PIE members
it
>>takes to change a light bulb.
>>
>>Should we now add info on how long the bulb burned before blinking out
>>(would have had to witnessed the event)? Or just note the time when
>>first noticed that the bulb was burned out?
>>
>>How long was the bulb burned out before someone got around to changing
>>it?
>>
>>How long was the new bulb just sitting in the cabinet before being
>>called into service?
>>
>>Do a statistical analysis as to the frequency of burnout at each
>>location?
>>
>>All this above has been with tongue in cheek! I do feel that age and
yrs
>>since dx is sufficient for me. I did like someone's idea that year of
>>birth and year of diagnosis would be a good alternative to age and yrs
>>since (requires me to remember to change those numbers every year). On
>>second thought, maybe that's good to have to change those each year,
>>reminds me of the urgency to get something done about a cure. Wouldn't
>>it be great to be able to sign off with:
>>
>>Darwin Hawkins 62/6/1
>>
>>where 62 is my age two years from now
>>5 would be the elapsed number of years of enduring PD after diagnosis.
>>1 would be the number of years since completely cured.
>>
>


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