The gentleman in question who's the originator of the "Blue lenses
for relief of  some major PD symptoms," is Tom Reiss.  Tom, a person
with PD,  has regularly posted valuable (if somewhat
out-of-the-ordinary) information here on the List, often derived from
his own extensive research.  He never has asked for payment from List
members when he posts these helpful findings.

Tom appears to be a modest individual, and doesn't post that he's had
an extensive carrier in the medical field (sorry if I'm blowing your
cover Tom, but perhaps it's best that List-folks know?) <and
besides - I was appraised of your sterling qualifications by none
other than the late, much missed Alan Bonandner, and THAT'S like
getting credentialed by the Deity himself!) <smile>

When Alan Bonander was a guest speaker at my PD support group, I
recall him popping a pair of Tom's miraculous blue-lensed glassed on
a very diskenesic fella (waving at Marty as he lurks on the List),
and was astounded to see the dyskenesia  immediately stop!  AMAZING!

In Kathrynne Holden's outstanding book (a "must" for all Parkies and
caregivers!), "Eat Well, Stay Well with Parkinson's Disease, "
Kathrynne has provided the formula of the blue tint, and how to apply
it to lenses (see page 139) so I presume this information is in the
public domain (please correct me if I'm wrong, Tom and/or Kathrynne).

Tom - it would benefit the skeptics as well as the general List
populous who may read your posts here on the List if included the
fact that you have a medical background.   And hey - keep on posting,
'cause WHAT you post is always valuable to PWPS!

Barb Mallut
[log in to unmask]


-----Original Message-----
From: Bill Harrington <[log in to unmask]>
To: Multiple recipients of list PARKINSN
<[log in to unmask]>
Date: Sunday, November 22, 1998 12:13 PM
Subject: "snake oil", back pain, parlodel


>I'm not entering into the great snake oil debate, but I have a
(short)
>story to tell.
>Years ago, there was a post by a gentleman who claimed he had the
answer
>for all those PWP who suffered from severe extra movements
particularily
>when under stress. He claimed tinting your glasses a light shade of
>blue would cause the eyes to be able to focus and help stop the
>jerking of your head, followed by your limbs. For only $1 he would
send
>you lenses that would clip over your glasses... this is his general
idea
>I may not have the wording exact.
>But the thing was he was laughed off the list. A short time later, I
>was getting my eyes checked for my reading glasses and I asked the
>optometrist, as I squirmed around, if he had ever heard of such a
>thing but it was possible. As I had to have my lenses changed anyway
>for a small extra cost I had them tinted light blue. Not only did
>I look like "Link" from the "Mod Squad" it actually worked, (works).
>Now, whenever I know I'll be in a stressfull situation I drag out
>my trusty glasses...
>Another story just came to mind, again a while back, was a person
>who's dream was to walk across Canada stopping in most major cities
>along the way, giving speeches about his battle with PD and recovery
>due to Pallidotomy, how he had gone from attempted suicide to a
return
>to faith and had written poetry combined with art that formed an
>exhibit that touched so many people. THis person thought he could
raise
>awareness of PD ala Terry Fox. He had planned on using his meagre
savings
>and monthly pension to finance his walk, planning to ask budget for
a
>van (which he had used previously). He found a driver willing to not
>only do it for free but would contribute his cheque as well. THis
man
>was sure he could get McDonald's to supply some meals along the way,
>Esso for gas, major hotel chain for accomadations. ALL the funds
>collected would be donated directly to Parkinson's research.
>He was planning on asking for a member of the various pd groups
>along the way to ride with them and handle all the funds. He figured
>it might take as much as a year, but he was seperated, unattached.
>He wrote to this list seeking advice and encouragement. Instead,
>he was ridiculed and flamed off list and ignored on. Crushed he quit
>the list.
>I know this for a fact cause that was me. It is still my dream,
>and I wont let go of it. I have thouht of a more realistic method
>of achieving the goal. A relay of Parkinson walkers by province.
>Each one could find their own corporate or private sponsors.
>We could show that Parkie's aren't all old, that research can
>make a difference. I live in Victoria, I could start at mile one of
>the Trans-Canada. Is there anyone out there who would like to meet
>me at the Alberta border? We would have to plan well in advance,
>probably looking to start in the spring. Or we could go city to
>city, the idea is to raise public awareness. Or each person could
>walk 26 miles, could be a marathon of hope. Surely, we could do
>that?
>Now, more than any other time, we need to be visible, we  can
>fund our own cure.
>All you young pd'rs, or those just diagnosed this is your chance
>to brighten your own future.
>BTW DON"T send me money, but remember the guy with the blue glasses.
>Bill
>