Jay Henkelman wrote:
>
> Ready or not, I'm back with "the list" just in time to add a few cents to
> our collective pot.  After watching 20/20, I must say that Mr. Fox is a very
> positive guy with a very powerfull overall support system.  You have to
> admire his demeanor in view of all the facts, not to mention the nasty
> potential of things!  Mr. Fox appears to be dealing with Parkinsons in a
> very productive manner.........albeit on a personal level.  I'm very happy
> for him, (sincerely) some very positive influences are at work in his life
> while he toils with our ever-infringing and mutual enemy.
>
> If one is to consider the interviews impact on the Parkinson community, (the
> whole scheme of things) well, this is the 2nd time I've seen the "Titanic
> sink" this year!!!...........talk about rapid deflation!  I'm getting stiff
> and shaking just thinking about how counter-productive this interview will
> be to our agenda, which is (or should be) to paint Parkinsons as the monster
> it really is!  Instead, we have a really nice guy who "had" an unfortunate
> and "rare" bout with Parkinsons (now mostly corrected by skilled neuros)
> whose current symptoms are of no big deal.  As "Access Hollywood" said this
> same evening:  "He has (M.J.F.) such a good attitude and He looks great".
> And as Michael stated "life is so good"...........et cetera.  Was that
> Barbara Walters or Tony Robbins with a blond wig?  I'm going to get up
> tomorrow and sell my Porsche!  Put me on that list for some o dat.......>
> brain surgery!  It's kind of like the movie "Pleasantville"............where
> everything is La de da......de da!
>
> Michael, I still love ya!  However, facts are facts and I choose to live in
> the real world.  I have no doubt regarding your good intentions during the
> 20/20 interview.    The exposure of the words "Parkinsons Disease" to the
> viewing public would normally be beneficial as it creates awareness.
> Unfortunately, I believe that this interview may be considered nothing less
> than a colossal failure in terms of PD interests.  Awareness has been
> created but without the very necessary impetuous to effect action.  I am
> hopeful that as Mr. Fox goes through the "learning curve" of relevant PD
> politics, He will do the right thing.  At least try to bring us back to
> where we were before treading backwards!  I don't want to live in
> Pleasantville!  At least not with PD!
>
> Aloha to all,
>
> Jay A. Henkelman
> 48/39/30
Our thoughts exactly!
Donna and John(50/3/37)