THANK you, Hilary.  I have a long-standing appointment with my regular
family doctor on Thursday for a regular old annual exam; I shall ask him to
read my post & then your response about stroke (no way could I explain this
orally).  At this point basically hope I DID have a stroke - it's an answer.
-----Original Message-----
From: Hilary Blue <[log in to unmask]>
To: Bruce Anderson <[log in to unmask]>
Date: Sunday, January 24, 1999 6:27 AM
Subject: Re: Requip reaction/ MRI


>Bruce,
>
>A friend of mine , who wishes to remain nameless, recently had a whole
bunch
>of PD related(or so it seemed) things happen to her, Her voice suddenly
almost
>disappeared, she lost a lot of weight - which she could not afford to do,
she
>became much more dyskinesic, her eyelids drooped so that she had difficulty
>seeing, and more I do not remember. Her neuro just prescribed more sinemet,
>but it made no differenc. One weekend, she was at a family gathering and
met a
>young man who had recently married into her family, and was not aware of
her
>medical history. It turned out he had just graduated as a medical resident,
>and he asked herif she minded telling him what her problems were - well to
cut
>a long story short, he suggested she had had a mild stroke! Subsequent
testing
>proved him right! Another example of Complacency and PD masking another
>condition.  And the fresh unbiased eye of the new doctor finding the truth.
>
>I don't mean to scare you, or to suggest that you may have had a stroke -
but
>maybe a new doctor who does not know your history, so does not come to the
>examination with his mind already made up, may discover something quite
simple
>that may solve the problem?!?!?
>
>hiLary bLue
>
>
>
>Bruce Anderson wrote:
>>
>> 1. Has anyone had a bad reaction to Requip?  I started on it, slowly, a
>> month ago. I went t the full I mg dose three times a day from 3/4 mg 5
days
>> ago.  The day before yesterday my voice, which has been one of my biggest
>> problems for a couple of years, suddenly got much worse  - to the point
>> where I am suddenly virtually unintelligible.  Besides the dramatic
change
>> in my voice, I just feel out of sorts, kind of a sick feeling, although
not
>> at all dramatic.
>>
>> I have to say that I may have one of the PD+ diseases so none of you
might
>> be able to relate  to my situation. A test in December eliminated PSP,
>> Progressive Supranuclear Palsy, as a suspect  but there are other
>> candidates.   None of the drugs work for me. I have tried Permax,
Mirapex,
>> Tasmar and now Requip.  None has helped my inability to walk unaided and
my
>> terrible gait; my serious speech problem (I had Lee Silverman therapy
about
>> 9 months ago - it seemed to help at first but it's been downhill all the
way
>> for me up to this latest episode), my poor posture  & back ache, as well
as
>> my now near blindness much of the time from blephrospasnm in both eyes.
I
>> don't have ON's & OFF's & no tremors. I do have some of the other PD
>> symptoms, though.
>>
>> I am probably grasping at straws in hoping this is a reaction to Requip,
but
>> not being able to be understood at all now is very distressing - as is
the
>> possibility I don't even belong here with you folks [distressing to me
>> anyway]
>>
>> 2.  I am having an MRI on Tuesday.  Like a dummy I didn't even ask my
doctor
>> what this is supposed to tell him.  The prescription form says Rx MRI of
the
>> brain, without gadolinium, Dx  atypical Parkinson;s Disease.  Does anyone
>> know if this will be at all definitive as to what I have?
>>
>> THANKS TO ANYONE WHO CAN SHED ANY LIGHT ON THESE 2 THINGS FOR ME!!
>> B. Bruce Anderson (53, 5)
>> Schooley's Mtn., NJ
>> [log in to unmask]
>