Hi Brian,

I wholly agree wth Jim Cordy.
A Tasmar survey, not an agonist, would be of benefit to many.

Ivan
:-)

On Fri, 16 Apr 1999 05:50:39 -0400 Jim Cordy <[log in to unmask]> writes:
>Brian,
>
>I've often thought of doing what you propose.  You are to be applauded
>for
>your past efforts and certainly what promises to be monumental task
>that you
>now propose.  I pledge to help you in anyway possible.  The problem
>of
>course is too many variables.  Besides the variation inherent in
>individuals, there is age, progression of disease, and other
>medications.
>But, what the hell, nothing ventured, nothing gained.
>
>Other suggestions:
>1)you might want to make some changes to the form such as other
>Parkinson's
>medication
>2)many list members are in a support group and could distribute the
>form to
>group
>
>> -----Original Message-----
>> From: Parkinson's Information Exchange
>> [mailto:[log in to unmask]]On Behalf Of Brian Collins
>> Sent: Thursday, April 15, 1999 6:43 PM
>> To: [log in to unmask]
>> Subject: Sorting out the Agonists
>>
>>
>> I think it's about time that we got a clear picture of the
>> various dopamine
>> agonists, since they feature in most people's drug diet these days.
>For
>> instance; I take Permax (Pergolide) in addition to levadopa. Over
>the last
>> 6 years I have worked myself up from zero to 5 mg of Permax in order
>to
>> combat the steady deterioration which is the hallmark of PD. Now
>> this simple
>> fact is of very little use if I want to see into the future, unless
>I can
>> relate my current intake of Permax to some absolute standard.  Not
>only
>> that, how do I relate my situation to that of someone taking say
>> Ropinirole
>> (Requip)?  With your help, I think we can answer these questions.
>>
>> What we need is for as many members of this list as possible to
>> complete the
>> response form at the end of this e-mail. I have not seen this
>attempted
>> before (maybe it can't be done) but let's make the attempt.
>>
>> Problem areas: A key question is 'What is the maximum safe dosage
>of
>> whatever drug you are using?' This is bound to be a moving feast in
>> practice: for instance; when I was taking 2 mg of Permax, my
>neurologist
>> told me that about 4 mg would be the maximum safe level.  When I
>reached
>> 4mg , he told me that people were taking up to 12 mg. I am very
>grateful
>> to these pioneers for effectively opening-up my future by several
>years.
>>
>> If we get enough of a response to make a useful analysis I will
>attempt
>> to do so, and will make the data available to anyone who asks for
>it. Of
>> course any results will be published in the list.
>>
>> Questions:
>>
>> 1/ Which Dopamine Agonist are you taking?
>>
>> 2/ When did you start taking it?
>>
>> 3/ When were you diagnosed as having PD?
>>
>> 4/ What was your age when diagnosed?
>>
>> 5/ When do you believe (with hindsight) that you experienced
>> first symptoms?
>>
>> 6/ What is your present daily intake of levodopa? (Sinemet,
>Madopar)
>>
>> 7/ What is your present daily intake of Dopamine Agonist?
>>
>> 8/ Has your neurologist advised you of the max. safe dose for
>> your agonist?
>>
>>
>> --
>> Brian Collins  <[log in to unmask]>
>>

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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