maryhelen  do you remember phyllis riely 5 years i hope you do.

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> Don't take the time to read this unless you've not much else to do..
just a
> long rambling summary of my history of visual concerns and an emotional
plea
> to continue the fight..
>
> I'm having a heck of a time typing, but I'm in an ON window of opportunity
> and for some strange reason feel it's important to share this rather than
> spend this prescious little ON time to answer friends and other promises
I've
> made (thanks for your tolerance). I feel compelled to share although and I
> don't think this will "help" anyone other than as a comparison for their
> experiences - but I hope it might be useful - I wish I knew a neuro
> opthamologist who might take interest and use our "visual experiences" to
> help them study the effects of PD drugs. A thought for "newbies": I've
> learned that not every negative symptom  we experience stays with us. -
some
> symptoms come and go away. others may not.
>
> I was seeing  neuro-opthamologist for a few years due to vision concerns -
> finally quit seeing him because he couldn't help, but he did explain that
> dskenisia of the eyes causes the bluring
>
> For what it's worth - here's my little history f vision concerns:
>
> Double vision started the first 6 mos of using Sinamet, at first only
slight
> (I had a sensitivity to the changing scenes of high action TV shows - as
> though my eyes couldn't keep up with the changing scenes) then soon,
about 3
> mos after that,  slight double vision started - television showed larger
> figures overlapping on the TV, but not on anything else I looked at. That
> progressed however as the two images of one object became more separate
and
> transferred to otther larger objects away from the TV (people, chairs,
etc).
> These visual concerns were not 24 hours a day - but they occurred usually
> earrly evenings  from a few minutes to a few hoiurs daily - clearing up
> before bedtime. Then I picked up an odd thing (ok, another odd thing) -- I
> know this is crazy, but I started seeing what I call silver circles at the
> far right corner of the right eye ( kinda like a concentrated spots of
light
> in a  night time photo). They cause discomfort, they just started to
appear -
> no explanation. My neuro (world recognized PD specialist) said he thought
it
> was the drugs - they affect people differantly and I seem to be
oversensitive
> to drugs and drug changes -- couldn't explain why or how). At the time I
was
> on what now seems an overload of eldepryl - highest dose per pill, 4 x's
> daily + sinamet CR 50/200 3 x's daily that was over 5 years ago or so. The
> double vision lasted about a year or a little less, and the blurriness has
> become much more pronounced but much more predictable - it's one of my
first
> warnings that I'm going into a "crash" OFF (my worst kind of OFF). The
silver
> circles happen now when I've been deprived of Sinamet (last dose over 4-5
> hours). Otherwise my eyesight is fine. Eyeglasses don't help the
blurriness -
> they just magnify it. I just ask people around to read things to me if I
need
> something read, but ussually I try not to bug others and I I try to wait
it
> out 'til a better time. It cuts back on my enjoyment of the PARKINSN LIST
> I'm sorry to say (I miss alot of messages).  I offer all this little
history
> summarywishing trhat somewhere out there an opthamologist or neuro
> opthamologist might someday come across this and use it to study the
effects
> of PD drugs on vision -- ha! What a dreamer!
>
> smile
>
> It's our life, and PD has no right of ownership
> Our life's worth it - for us and our loved ones
> Don't stop, you may not be able to move again if you do
> We must continue the fight aganst PD, even if we feel we can't anymore
> It won't go away 'til we give it the kick-in-the-butt it deserves for
daring
> to put us through this Hell
> PD forces us to watch ourselves being
> slowly and hideously murdered..
>
> Don't let PD get away with our murder
>
>
> maryhelen
>
> age 46/ dx at 36
>