Yipes, now I'm agreeing with you, janet. Time for me
to stop having, or at least voicing, opinions for one
day.
               Foot in Mouth, Carole H.

--- janet paterson <[log in to unmask]> wrote:
> hi all
>
> At 01:06 1999/08/18 +0800, dennis wrote:
> >It is interesting to notice that almost
> imperceptibly certain
> >attitudes are becoming politically correct in our
> little
> >community.  Which is a pity because political
> correctness
> >is a tool for social comfort not for truth....
>
> IF you mean me,
> truth rates miles over the other to me
> and always has
>
> how on earth anyone could interpret me as
> politically correct,
> of all things, is beyond my comprehension
>
> >Take, for example the subject of end stage
> Parkinson's.  Recent comments
> >by Joan Samuelson, as reported in the NY Times,
> brought this frightening
> >subject into discussion.  And how did we respond -
> we denied the problem
> >existed...
>
> IF you mean me and my response to joan snyder
> i disagree
> and deny any such denial
>
> i simply pointed out
> that i felt the sensationalizing as i saw it
> was being done by the journalist and not by joan
> samuelson
>
> >We said as to those who expressed their fear at the
> prospect of
> >Stage V PD that it would never happen...
>
> IF you mean me and my reply to joan snyder,
> i disagree - where in heck did you read this?
>
> >Have hope we said - look to the future, look to the
> cure. ..
>
> IF you mean me and my reply to joan snyder,
> i don't think i said that
> not at all
>
> in fact i was saying / implying / suggesting the
> opposite
> quit looking to the future
> [in either naive pollyanna optimism or in
> catastrophizing pessimism]
> unless you have a license to operate a crystal ball
>
> >And it is right that we said so - because we must
> have hope
> >and we must look to the future. We must also raise
> the money
> >that will fund the research that will find the
> cure...
>
> i think it's more realistic to say
> "may fund" and "may find"
>
> >But we should not, in the process, deny that Stage
> IV and V PD
> >exists. It is not some bogey man existing only in
> imagination -
> >it is real and for a great many of us it is not in
> the future -
> >it is already the present...
>
> IF you mean me and my reply to joan snyder,
> i don't think i denied the existence of anything
> in the present
>
> >What's more it has not been put on hold because
> "the cure" is
> >coming.  Even if the cure is only 5 - 10 years away
> a great
> >many of us now in the earlier stages will
> experience these later
> >stages...
>
> you and me both!
> we "may" experience them
>
> but that potential that possibility
> [it is not a definite nothing is]
> is not going to stop me dead now
> is not going to freeze me into fearful do-nothingism
> and it sure as heck hasn't stopped joan
> which was my entire point
>
> >If today we silence those people who are prepared
> to share with
> >us the fullness of their experience, by accusing
> them of being
> >pessimists and gloom and doom merchants merely for
> stating the
> >way things are for them, this community will be
> doing itself a
> >disservice, and one the current crop of Stage I II
> and III PWP
> >will regret if the cure is delayed by even a few
> years...
>
> how on earth is a robust discussion and/or
> disagreement
> 'silencing' anyone?
>
> IF you mean me and my reply to joan snyder,
> imho
> her talk - doom and gloom - her words, not mine
> did/do not match
> her walk - hope, faith, work, love - her actions
>
> >The thought of late stage PD is a frightening one -
> but the possibility
> >of having to face it someday cannot be ignored. No
> doubt the argument
> >will be made that for the newly diagnosed it is all
> to much to soon...
>
> IF you mean me and my reply to joan snyder,
> i surely would never advocate anything less than
> "learn as much as you can"
> to anyone
>
> as i have said ad nauseum i'm sure:
> knowledge = power
> fear = ignorance
>
> >This is possibly true, but I would suggest that the
> decision
> >then rests with them to read or not read such
> postings - to
> >remain or not remain on this list . If we, for
> reasons of political
> >correctness join with PD in silencing the worst
> afflicted of our
> >community, we betray them - and we betray
> ourselves...
>
> IF
> you mean me and my reply to joan snyder
> dennis
> i am flabbergasted
> that you have interpreted my message as:
> a. politically correct
> b. ignoring or denying the stark truth of pd as we
> know it now
> c. an attempt to silence anyone
> d. an act of betrayal
>
> IF you don't mean me and my reply to joan snyder
> yikes
> whose messages are you talking about?
>
>
> janet
>
> janet paterson
> 52 now / 41 dx / 37 onset
> snail-mail: PO Box 171  Almonte  Ontario  K0A 1A0
> Canada
> website: a new voice
> <http://www.geocities.com/SoHo/Village/6263/>
> e-mail: <[log in to unmask]>
>

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