Joan,
According to an NPF booklet "Support groups offer education,
socialization, and an invaluable 'all-in-the-same-boat' forum, where
people genuinely understand your concerns, and share insights...". It
sounds like your support group is into education but lacks the social
interactions that you need.
My husband and I facilitate a young onset support group (I have
Parkinson's) that meets once a month. We started off meeting in homes on
a rotating basis, but we got too large and too much house cleaning, we
now meet in a large living room like setting in a local church. I think
because we have a rather small group of regulars (6 couples plus ) it is
easier for us to become more involved with each other. Our best meetings
seem to be the ones where we spend the two hours just "sharing" and
maybe watching a video concerning some aspect of Parkinson's, and of
course we always have refreshments! We do have speakers, but they are
not usually Parkinson's experts. Rather, they cover a wide range of
topics such as exercise, social security, massage therapy, and art
therapy. Our speakers always seem willing to stay and interact with the
support group members. As a matter of fact quite often I have let
people know it's time to end the evening or I think we'd be there for
another hour! And most important, besides videos and speakers, a
support group meeting should always have time for spontaneous humor and
laughter.
Keep going to your support group for information because like you say,
the speakers and the question / answer sessions are "pretty good". In
addition, though, I suggest that you take charge by finding two or three
people in the group that you feel comfortable with and go for coffee or
lunch.
Sharon H
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