Arthur and William.........sorry but I did not write that nuisance
statement...I believe Carol was referring to Janet Reno's comments  when she
wrote that........and I agree that Janet Reno
 is covering herself and her job when she speaks about PD...and I firmly
believe that she is at the level of government where she could help all PWP
by picking up the phone calling congressmen and senators and encouraging the
Udall research funding distribution so she is indeed hurting all
PWP....maybe she doesn't know she could be a leader and a role model for
us....but.......
I guess we all do whaat we have to do.......
Joan Hartman
----- Original Message -----
From: Arthur Hirsch <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 19, 1999 8:44 PM
Subject: Re: "George" interviews Janet Reno


> At 07:12 PM 9/19/99 , you wrote:
> >In a message dated 9/19/99 11:16:16 AM Central Daylight Time,
> >[log in to unmask] writes:
> >
> ><<  Parkinson's is nothing but a damned
> > > nuisance?  >>
> >I used to feel that way, still do some times.  But who knew then that
such
> >nuisance raised several orders of magnitude could be so disabling and
> >uncomfortable?
> >
> >WHH
>
>
> Bill,
>
> First of all, thanks to Mary Yost for calling the George article to our
> attention.
>
> >From my observation and personal experience, most of us start out in
> denial, where the disease is a damned nuisance and discomfort, and as the
> disease progresses switch over to acceptance and start planning our lives
> within the bounds dictated by the disease.
>
> Some of us are smart enough to skip the denial step and start fighting the
> disease soon after diagnosis and before the disease limits their ability
to
> do much work.  Alas, that was not I.
>
> Once you have accepted the limitations, it would be unlikely that you
would
> go back to denial unless you got there through a cure or a major reduction
> of symptoms.
>
> I was in denial from roughly 1986, when I was diagnosed, until 1996, when
I
> joined this list.  I continued to work at my own business and planned as
> though I would be doing it forever.  Then I found this list.  I found DAPS
> (Dallas Area  Parkinsonism Society).  I learned more about Parkinson's.  I
> came to the conclusion that I would be better off expending my time and
> effort on fighting the disease first and doing the work that I am paid to
> do second - because if I did not fight it, the money that I made from
> working would be of no use.
>
> Janet Reno, it seems, is still in denial - denial, at least that
> Parkinson's can keep her from doing her job adequately.  She is at a high
> point in her life.  Presumably wants to stay on this high until 20
January,
> 2001, when her boss and she must both leave office.  If she comes out of
> denial early and speaks of the negatives of her PD, she would most likely
> also have to leave her office early.  I can't say that I would feel
> differently.
>
> I can understand that she might want to stay on this high and to deny
> Parkinson's in every way she that can until this presidential term is
over.
>  I can understand that she might feel that she can do more for the
country,
> for herself, and for us by continuing in a denial role.  I can understand
> that becoming an advocate for Parkinson's causes, in addition to her work
> as AG, might push her over the edge and be more than she can handle
> effectively.  Still, her courage to perform her job in the face of
> Parkinson's should be a model to us of one positive approach to the
> disease, and it could make her a more effective spokesperson for us once
> her role as AG is over..
>
> Let us hope that until 20 January, 2001, her symptoms remain of such a
> magnitude of disability and discomfort that she can continue effectively
in
> her job. Let us hope that on 20 January, 2001, she becomes a different
kind
> of model to us as she joins us in a different positive approach and starts
> to actively fight the disease.  Let us hope that if she waits until she
> passes from office that it will make her a better spokesperson for our
> cause and that she will become that spokesperson.
>
> And in the meantime, let us hope that we have one great attorney general
of
> the United States and that she is a credit to the Parkinson community.
>
> Art
>
>
> ______________________________________________________
>
>  Arthur Hirsch {} [log in to unmask] {} Lewisville, TX {} 972-434-2377
>  (nickname on instant mail, ICQ, and chat programs is cutterson)
> ______________________________________________________
>
>    PAN Forum, other photos, and my approach to links:
>          http://www.fortunecity.com/meltingpot/farley/817/
> ______________________________________________________
>