Teri-- welcome to the list and the "wonderful world of PD advocacy" !  I
expect you'll hear from others re: the hearing on Tuesday.  I want to send
you this list of resources for PWPs and their Caregivers (CGs) in case you
may find it helpful in making you feel less "new"   :-)   Check out what
interests you as time permits, and if you have a CG who would like to join
the CARE list, let me know.

Teri wrote:
>Hi:  This is all new to me >
>> I was diagnosed two weeks ago.  I do live in Pittsburgh, Pa  I'm 48 and
>don't know very much about Parkinsons.  If there is anything I can do for
>the hearing on Tuesday, please reply.  Teri
>>
*************
>
>Hi  new members---there are lots of good resources available for learning
>about PD.  Here's a partial list to give you a start:
>***********
>*   janet paterson's website--general information and many good links
>http://www.geocities.com/SoHo/Village/6263/
>########
>
>*   Art Hirsch's website--
>http://www.fortunecity.com/meltingpot/farley/817/blynx.html
>lots of good links., including to PD resources in :
>  -Argentina-     -Australia-     -Austria-     -Belgium-     -Brazil-
>-Canada-     -Chile-     -Colombia-     -Czech Republic --Denmark-
>-Faroes-     -Finland-     -France-     -Germany-    -Iceland-     -India-
>-Ireland-     -Israel-     -Italy-  -Jamaica-     -Japan-     -Luxembourg-
>-Mexico-     -Netherlands-     -New Zealand-     -Norway-     -South
>Africa-   -Spain-     -Sweden-     -Switzerland-     -United Kingdom- and
>-Western Australia
>
>########
>UK
>In the United Kingdom-- Contact Eileen Atkinson, <[log in to unmask]>
>about the Parkinson's Disease Society which is supportive in many ways, and
>also  YAPP&RS.  It stands for "Young Alert Parkinson People & Relatives".
>It was started originally for the young-onset Parkinsonians,   It's very
>good for those
>who fall into this category.  She will supply information and addresses.
>
>########
>
>*   The easy way to find a MOVEMENT DISORDER SPECIALIST is to dial
>1-888-400-2732.  This toll free number will ring in the American Parkinson
>Disease Association Information & Referral Center.
>########
>*National Family Caregivers Association: (301)942 6430  or 1 -800 -896 -3650
>Memberships are $20. yr. for individuals and  includes such things as:
>Take Care", an informative mewsletter with advice and resources
>CG-to-CG Peer Support Network, to help CG members find a friend in similar
>circumstances
>"The Resourceful Caregiver", a resource guide filled with information other
>advocacy and awareness -raising activities
>Costs are in US currency, and Canada residents are asked to include an
>extra $12. for postage
>A call to the 800# will get you a useful FREE packet of information.
>########
>
>*   Addresses for national PD organizations  in the USA:
>
>    The American Parkinsons Disease association (APDA)
>    1250 Hylan Blvd., Suite 4B,  Staten Island, NY 10305
>    http://www.apdaparkinson.com/  (includes directory of support groups)
>        Fax: (718) 981-4399
>       E-mail: [log in to unmask]
>       TOLL FREE: 1-800-223-2732   [1-800-223-APDA] National Office
>       Local from New York City or toll long distance:  (718)-981-8001
>       FAX TOLL (718)-981-4399
>
>       To reach the nearest A.P.D.A. Information and Referral Center from any
>       location in USA, DIAL
>       TOLL FREE: 1-888-400-2732    [The center reached will vary with
>where you
>       call from.  For example, if you call from Salisbury, Maryland or
>southern Delaware, the
>       call will go to Johns Hopkins in Baltimore.  If that number is
>dialed in
>       Alaska, Oregon, or Washington State, it will ring at the University of
>       Washington in Seattle.]
>
>   ALSO:
>
>    APDA Young-Onset Information & Referral Center
>    2100 Pfingsten Road,  Glenview, IL 60025
>    email [log in to unmask]
>    http://members.aol.com/apdaypd
>   1/800-223-9776
>
>       TOLL FREE: 1-800-223-2732   [1-800-223-APDA] National Office
>       Local from New York City or toll long distance:  (718)-981-8001
>       FAX TOLL (718)-981-4399
>
>       To reach the nearest A.P.D.A. Information and Referral Center from any
>       location in USA, DIAL
>       TOLL FREE: 1-888-400-2732    [The center reached will vary with
>where you
>       call from.  For example, if you call from Salisbury, Maryland or
>southern Delaware, the
>       call will go to Johns Hopkins in Baltimore.  If that number is
>dialed in
>       Alaska, Oregon, or Washington State, it will ring at the University of
>       Washington in Seattle.]
>
>        *********
>        National Parkinson Fndtn.,Inc.
>        1501 N.W. Ninth Ave. , Bob Hope Road, Miami,FL 33136-1494
>        (800) 327-4545       e-mail:  [log in to unmask]      Fax:
>305 548-4403
>        http://www.parkinson.org
>        *********
>      Parkinson's Action Network   - PAN
>      Website: http://www.sonic.net/~pan/
>      Address: 818 Suite C College Avenue
>      Santa Rosa, CA 95404
>      Phone: (707) 544-1994  or (800) 850-4726     Fax: (707) 544-236
>      E-mail: [log in to unmask]
>        OR
>     Capitol area office:
>     1001 Pennsylvania Avenue, Suite 850 North, Washington, DC 20004
>     Phone: (202) 628-2079    Fax: (202) 737-4242
>     E-mail: [log in to unmask]
>     A nationwide advocacy organization
>        *************
>
>* Parkinson's Disease Foundation   - PDF
> Website: http://www.pdf.org
> Address: 710 West 168th St. Third floor -  New York, NY 10032-9982
> Phone: 212-923-4700 or 800-457-6676     Fax: 212-923-4778
> E-mail: [log in to unmask]
>        OR
> Midwest office:
> 833 West Washington Blvd., Chicago, IL 60607
> Phone: 312-733-1893
>########
>*   National Institute of Health Research News Parkinson's Disease
>        http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
>########
>AND in CANADA:
>
>*National Office
>The Parkinson Foundation of Canada
>710-390 Bay Street ,Toronto, Ontario, Canada, M5H 2Y2
>Phone : (416) 366-0099  Toll Free: 1-800-565-3000  Fax: (416) 366-9190
>
>(I have been told that as of September 29 the national office address
>will be that of  Central Ontario Region
>--see below.)
>
>*The Parkinson Foundation of Canada,Central Ontario Region
>4211 Yonge St, Suite 316, Toronto, ON, M2P 2A9
>Phone: (416) 227-9700, Toll free: (800) 437-6464 ,Fax: (416) 227 9600
>Acting Executive Director: Kim Anderson
>*********
>*The Parkinson Foundation of Canada, South Western Ontario Division
>150 Newbold Court, London, ON N6E 1Z7
>Phone: (519)-680-0430, Toll free: (888) 851-7376 - Ontario only, Fax:
>(519) 680-1940
>Executive Director: Carolyn Connors
>********
>*The Parkinson Foundation of Canada, Quebec Division
>Fondation canadienne du Parkinson, 1253 McGill College, Suite 402,
>Montreal, QC H3B 2YB
>Phone: (514) 861-4422 Toll free: (800) 720-1307 - national francophone
>line   Fax: (514) 861-4510
>Executive Director: Stephane Bordeleau
>*******
>*The Parkinson Foundation of Canada, Maritime Region/Nova Scotia Division
>5475 Spring Garden Road, Suite 407 ,Cornwallis Building, Halifax, NS B3J 3T
>Phone: (902) 422-3656, Toll free: (800) 663-2468 - toll free in NS, NB, &
>PEI, Fax: (902) 422-3797
>Acting Executive Director: Janet Gammon
>********
>The Parkinson Foundation of Canada, Newfoundland/Labrador
>P.O. Box 2568, Stn C, St. John's NF A1C 6K1
>Phone: (709) 754-4428, Toll free: (800) 567-7020 - toll free in
>NFLD/Labrador, Fax: (709) 754-5868
>Fundraising Coordinator: Hugh Cumming
>********
>B.C. Parkinson's Disease Association
>890 West Pender Street, Suite 600, Vancouver, B.C.  Canada    V6C  1K4
>Telephone: (604) 662-3240, Facsimile: (604) 687-1327, Toll Free:
>1-800-668-3330
>*******
>Parkinson's Society of Ottawa-Carleton
>1053 Carling Avenue, Ottawa, Ontario, K1Y 4E9
>phone: 613-722-9238, fax: 613-722-3241, email:psoc.lri.ca
>Susan A. Ziebarth, Executive Director
>
>###########
>For links to PD resources in these countries, see Art Hirsch
>  -Argentina-     -Australia-     -Austria-     -Belgium-     -Brazil-
>-Canada-     -Chile-     -Colombia-     -Czech Republic - -Denmark-
>-Faroes-     -Finland-     -France-     -Germany-    -Iceland-     -India-
>-Ireland-     -Israel-     -Italy-  -Jamaica-     -Japan-     -Luxembourg-
>-Mexico-     -Netherlands-     -New Zealand-     -Norway-     -South
>Africa-  -Spain-     -Sweden-     -Switzerland-     -United Kingdom-
>-Western Australia
>
>
>
>
>*   Awakenings
>        http://www.parkinsonsdisease.com/  (open forum)
>########
>*    The neuro website at harvard is an excellent resource:
>
>http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/pdmain.html#mainmenu
>     a psychosocial article is there along with an algorithm on managing pd
>and some excerpts from                  the young parkinson's handbook and
>a caregiver's handbook
>
>########
> Parkinson's Institute
> Website: http://www.parkinsonsinstitute.org/index.html
> Address: 1170 Morse Avenue, Sunnyvale, CA 94089
> Phone: 408-734-2800  or 800-655-2273 (Canada)  or 800-786-2978 (US) Fax:
>408-734-8522
> E-mail: [log in to unmask]
>  An independent, not-for-profit organization conducting patient care and
>research activities in the
>  neurological specialty area of movement disorders.
>
>########
>United Parkinson's Foundation
>NOW MERGED WITH THE PARKINSON DISEASE FNDTN.
>
>########
>* National Assn. for Incontinence, PO Box 8310, Spartanburg,SC 29305-8310
>1-800-252-BLADDER, OR see their website at  Http://www.nafc.org
>--ask for  their resource guide ,listing  products and services for
>incontinence
>
>##########
>
>Also, you may have joined after I posted the reminder about the sublist for
>caregivers: here's how to join it, if you are not already a member :
>
>any CG who wishes to join should send to:
>                [log in to unmask]
>
>this command --in body of post:--no signature, please:
>
>                SUBscribe CARE  your full name
>
>The request will be forwarded to the co-owners of the list, who will add
>you, and send you further instructions.
>
>Questions?  Ask  me---  Camilla Flintermann,  [log in to unmask]
>                         or---Jeff Jones,   [log in to unmask]
>
>########
>If possible, you should see a movement disorder specialist, who is fully
>informed about PD, as not all family doctors and general neurologists are.
>
>########
>
>Specific posts about a great variety of subjects are available in the list
>archive, at this URL:
>
>http://james.parkinsons.org.uk/search.htm
>
>That spot is the "starting point".  That is the site you should
>"Bookmark" to return to whenever you want to resume "mining".
>
>Click on that spot and you will arrive at the Parkinsn archive (bold
>heading)  As you read this page and scroll down you will come to a
>bold heading "Links".
>
>Click on Here's a link directly to the search screen.
>
>You will arrive at the Full Text Search Screen page.
>
>Place your cursor in the box, click, then type in whatever text you
>wish to "mine" (search for) and then click on the Search Button.
>########
>
>Hope this helps you get started!
>
>Camilla Flintermann, CG for Peter 81/70/55
>Oxford, Ohio
>http://www.newcountry.nu/pd/members/camilla/one.htm
><[log in to unmask]>
>
>                        "Ask me about the CARE list for
>                        Caregivers of Parkinsonians ! "
>