You can be as long winded as you want. That is what this list is for. Nita

Tina wrote:

> Hi Janet,
>         I first starting having problems in november 1998, mainly depression,
>                                                             headaches on left
> side of head and neck, and tremor in right hand.  Seen 3 regular
> neurosurgeons from november 98' to may 99'.  I received a medicine for benign
> tremor, because one neurosurgeon said since the cat scan was normal I didnt
> have PD.  Well the medicine wasn't working, so they increased the doseage,
> still no good.  So then I found an excellent Parkinson's / Movement Disorder
> Specialist in Dr. Aria Dalvi.  He told me I had the classic signs of
> parkinson's.  My whole right side of my body is slower than my left side, I
> have a lot of rigidity in my right side, he could see it in my walk, tremor,
> and depression.  He put on Amantdine, and then 1 month later, I was better.
> I am 31 yrs old, live in Cincinnati Ohio.  Dr. Dalvi is with the University
> of Cincinnati Medical Center.  I had to go back to him recently, due to
> tremor back, right leg freezing at times, or it will drag on me.  I fell a
> couple of times.  My balance has gotten worse.  So now along with amantadine,
> I am on Mirapex also.  I am going to a support group this morning especially
> for young onset of PD.  I will let you know how that goes.  I am also seeing
> a therapist.  She is helping me to learn how to deal with this, since I do
> live alone, and also because my parents are going through a divorce after
> 32yrs.  And then my mom is having trouble accepting that I have PD.  She
> keeps telling me I don't have. But that is another long story.
> I seen this listserv as I was browsing the web.  I was looking for support
> groups that meet at certain times on the internet but can't seem to find
> any.  Thats all for now.  Don't want to be too long winded.
>
> Tina Beyer
> janet paterson wrote:
>
> > hi all
> >
> > At 17:01 1999/10/29 -0400, tina wrote:
> > >You guys are real nice and upbeat, but I have to say my own opinion.  I
> > >was dx in June with PD, and I am a fighter, so it doesn't bother me that
> > >much.  I realize I will have to make adjustments down the road.  The way
> > >I see it though, the only thing government and research companies are
> > >going to do, is help us live with it.  There will not be a cure because
> > >the drug companies are making too much money.  I mean come on, all the
> > >technology we have today, and the last thing we came up with a cure for
> > >was Polio.  I really think we can have a cure for everything by now, but
> > >why when you make all this money off drugs.  Hope I didn't offend
> > >anyone, just wanted to get that off my chest.  Hope everyone had a nice
> > >day.
> > >
> > >Tina from Ohio
> >
> > hi tina
> >
> > get ready for the jaNET INTER-rogation!
> >
> > tell us more about your diagnosis
> >
> > what kind of doctor/specialist did you see?
> > how long had you had symptoms?
> > how old are you?
> >
> > were you given any advice/information about pd?
> > or about support groups?
> > how did you find us?
> >
> > did you know that you share a state with the cyber-dad-pd-hero
> > of this list?
> >
> > your new-found cyber-sis
> >
> > janet
> >
> > janet paterson
> > 52 now / 41 dx / 37 onset
> > 613 256 8340 po box 171 almonte ontario canada K0A 1A0
> > a new voice: <http://www.geocities.com/SoHo/Village/6263/>
> > <[log in to unmask]>