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Thank you, Kathy. You are very kind. Carole --- Kathie J Creveling <[log in to unmask]> wrote: > Dear Carole, what can one say at a time like this for > you? How very sad to > hear of what has happened to you. My prayers are with > you. Kathie Creveling > ----- Original Message ----- > From: Carole Hercun <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, January 03, 2000 4:35 PM > Subject: Re: price of PD medication / Another Perspective > > > > Hi Charlie and Chris: Just to put this in perspective. > I > > had the unfortunate occurrence of being 'stuck' today > with > > a needle I had used on a patient of mine with > full-blown > > AIDS and Hepatitis. (The so-called safety mechanism on > the > > syringe was apparently unsafe.) The infectious disease > > people said that the prophylactic treatment had to be > > started within hours to be effective. Therefore I had > to > > pay out-of-pocket to the closest pharmacy that had the > 3 > > AIDS drugs I needed (which will be reimbursed.) The > point > > of all this is that the cost for a 7 day supply was > > $1,000.00 and I think that is criminal in a country as > > wealthy as the U.S. > > These are patients with a disease with a 100% mortality > > rate and this is what they are expected to pay? > > Carole > > P.S. Don't know yet what cost of Hepatitis globulin > will > > be. > > --- "Charles T. Meyer, M.D." <[log in to unmask]> wrote: > > > Chris- > > > > > > That strategy makes sense except for the fact that > > > customs might confiscate > > > meds being imported into at least the US. I have > heard > > > of such cases where > > > meds from Canada were taken at the border when there > were > > > large amounts > > > bought by US citizens in Canada. > > > > > > Charlie > > > > > > ----- Original Message ----- > > > From: Chris van der Linden <[log in to unmask]> > > > To: <[log in to unmask]> > > > Sent: Monday, January 03, 2000 2:20 AM > > > Subject: Re: price of PD medication > > > > > > > > > > Hi everybody, > > > > > > > > There is a simple way to have the medication at a > lower > > > price, but all > > > > members of the network have to participate. Just > list > > > the price of > > > > anti-Parkinson medication (either per tablet, or > per > > > 100 tablets in the > > > > local currencies) on this list and than we will > compare > > > the prices. We > > > will > > > > than purchase the medication from a country with > the > > > lowest price and > > > > distribute it to the members, who pay too much. > > > Remember (especially for > > > > the USA members), that for example Sinemet 25/100 > is > > > the same in each > > > > country, from the same company, so don't be afraid > that > > > you will get > > > > something else or a different concentration etc. > of a > > > specific > > > medication. > > > > Sometimes, medication in different countries have > > > differerent names, to > > > make > > > > it more complicated for the "consumers". Therefore, > I > > > suggest we use the > > > > generic name if applicable. Here is a list of > > > frequently used > > > anti-Parkinson > > > > medication: > > > > levodopa/carbidopa Sinemet > > > > levodopa/benserazide Madopar/Prolopa > > > > selegiline > > > Eldepryl > > > > amantadine > > > Symmetrel/Amantan > > > > entacapone Comtan > > > > tolcapone > Tasmar > > > > trihexyphenidyl > Artane > > > > orphenadrine Disipal > > > > ropinorol > Requip > > > > pergolide > Permax > > > > bromocriptine > Parlodel > > > > pramipexole > Mirapex > > > > etc. > > > > > > > > The pharmacological companies won't like this, but > this > > > is one way of > > > > showing them that we can bypass their high prices > in > > > certain countries. > > > > Maybe, they will than start to adjust their prices > more > > > uniformly. > > > > It does surprise me again that Parkinson support > groups > > > don't put pressure > > > > on companies and/or governments to lower the prices > of > > > meds. > > > > > > > > Good luck and again a happy and healthy 2000. > > > > > > > > > > > > Chris van der Linden, M.D. > > > > > > > __________________________________________________ > > Do You Yahoo!? > > Talk to your friends online with Yahoo! Messenger. > > http://messenger.yahoo.com > __________________________________________________ Do You Yahoo!? Talk to your friends online with Yahoo! Messenger. http://messenger.yahoo.com