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Shirley....

I've had  problems swallowing and don't have
dentures (lotsa root canals tho)
<UGH!>

In my research, I've come to the conclusion that the dental
and throat aspects of PD are either sadly overlooked by
the respective medical professionals who should be up
on these type problems or they just don't know all that much
about what's going on with the average PD patient
vis a vis dental/throat problems (and I DO recognize these
are two different  medical modalities - however what affects
one can so easily affect the other...)

I'd like to find a savvy dental specialist whose "savviness"
and interest leans towards helping the patient with PD.
I'd also like to find the same with a throat and  neck specialist
(and the latter two seem tot go hand in hand in the medical
world).

So far, I've been to the best that UCLA has to offer
(Dr. Gerald Berke) and found the medical equivalent of
a "one trick pony, " when it comes to helping the PD patient.

I was able to get collagen injections into m y vocal
cords, however, when my body began absorbing the
collagen within 12 hours of getting the injections (sigh) that
was that, as far as anything else in the pipe line other than
conventional speech therapy (been there, done  that) <ditto
the Lee Silverman speech therapy>

It wasn't the MD who told me about voice amplifiers - - -
I came across the voice amplifier I've been using myself
(and it does the job well), however, I DO recognize that
to be another medical "band aid" that doesn't treat or
cure the  underlying problem(s).

In my case, IF I wanna be heard when I speak (And I DO!),
I'm gonna have to settle for being "Bionic Barbie," and just
plan on taking my voice amplifier everywhere I go.. much
to the chagrin of my younger (31 years old) daughter who
recently asked me if I wasn't using the amplifier to get
attention?  (OYE!!!  I can sure think of other ways to get
attention, tho I must admit that this "bionicness" HAS
caused folks to ask me a LOT of questions  about  WHY
I need the amplifier to be heard.   And I  DO look at that as
an open door to do a some PD advocacy.

In a rush - contractor due any minute - sorry about the typos...

Barb Mallut
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-----Original Message-----
From: Edward Kleinmeyer <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, January 06, 2000 9:36 PM
Subject: symptoms of PD


I go to neuroligest tomorrow for testing. Thought maybe someone
could tell me, I have been having trouble chewing and my dentures
don't fit well any more,also I seem to be choking a lot . I have
had my dentures relined in the last 8 months but I seem to be
right back where I was before. Is this just another symptom? I'll
admit that I am scared.  Shirley