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Precisely, Art

but let us not forget that our leaders are concerned with issues, with "the
cure" whereas aas we, the individual sufferers, are concerned with the little
man, with each  and every single person. Not with percentages - eg an 87%
success rate means nothing to me if i am one of the 1 3%

hilary blue (51,33,24)



Arthur Hirsch wrote:
>
> Pat, I share your thanks that we are finally getting to the cure - and with
> you pray that it is in time for "us."
>
> The "band-aid" therapy of the past has been driven by economics -
> the razor/razor blade analogy, if you will.  We have the razor (the disease)
> and they want to sell us the blades (the pills).
>
> I think of how you and I and Dale and others on this list would be were it not
> for these pills or "band-aids," as you call them.  Without these medications,
> so many of us would be ineffective as fighters for the cure, and PAN might
> not have existed.  Yes, I'm thankful for the direction that research is
> taking,
> but I'm also thankful for the medicines that have allowed us to get this far.
>
> But let's not get carried away with this.  The companies whom we thank
> for these "band-aids" have a strong vested interest in there not being a cure,
> and they too are represented in Washington.  Our leadership and grass roots
> efforts are still critical to finding the cure.  Let's not forget it.
>
> Art
>
> At 06:49 AM 1/7/00 , Pat Schark wrote:
> >Dale,
> >
> >I think PAN has been conscientious about keeping us informed, so we should
> >be getting the details of this meeting.  Now you've piqued my curiosity, so
> >I'll be watching for it.
> >
> >Thank God people are focusing on a cure for this disease instead of the
> >"band-aid" therapy of the past.
> >
> >Regards,
> >
> >Pat
> >
> >