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Thanks Barb, I seen the neuroligist this A.M. and he said ( I don't think tou have PD). But he could not give me any answers to questions like, why I get chocked,why I shake,why I can't write anymore, why my chin trimbles,why my legs and feet swell and ache,why my teeth don't fit even after I have had them relined 6 months or so ago,why my vision has changed even after I had them checked 1 yr. ago,why I have ringging in my ears. All he done was a visual check, and sent me for 2 blood tests. 1 for thyroid 1 for enemea. Your experienced with this, Please tell me if I am off base to feel less than satisfied with this evaluation? Be honest,I'm a big girl. Thanks Shirley -----Original Message----- From: Barb_MSN <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, January 07, 2000 11:49 AM Subject: Re: symptoms of PD/Looong Reply >Shirley.... > >I've had problems swallowing and don't have >dentures (lotsa root canals tho) ><UGH!> > >In my research, I've come to the conclusion that the dental >and throat aspects of PD are either sadly overlooked by >the respective medical professionals who should be up >on these type problems or they just don't know all that much >about what's going on with the average PD patient >vis a vis dental/throat problems (and I DO recognize these >are two different medical modalities - however what affects >one can so easily affect the other...) > >I'd like to find a savvy dental specialist whose "savviness" >and interest leans towards helping the patient with PD. >I'd also like to find the same with a throat and neck specialist >(and the latter two seem tot go hand in hand in the medical >world). > >So far, I've been to the best that UCLA has to offer >(Dr. Gerald Berke) and found the medical equivalent of >a "one trick pony, " when it comes to helping the PD patient. > >I was able to get collagen injections into m y vocal >cords, however, when my body began absorbing the >collagen within 12 hours of getting the injections (sigh) that >was that, as far as anything else in the pipe line other than >conventional speech therapy (been there, done that) <ditto >the Lee Silverman speech therapy> > >It wasn't the MD who told me about voice amplifiers - - - >I came across the voice amplifier I've been using myself >(and it does the job well), however, I DO recognize that >to be another medical "band aid" that doesn't treat or >cure the underlying problem(s). > >In my case, IF I wanna be heard when I speak (And I DO!), >I'm gonna have to settle for being "Bionic Barbie," and just >plan on taking my voice amplifier everywhere I go.. much >to the chagrin of my younger (31 years old) daughter who >recently asked me if I wasn't using the amplifier to get >attention? (OYE!!! I can sure think of other ways to get >attention, tho I must admit that this "bionicness" HAS >caused folks to ask me a LOT of questions about WHY >I need the amplifier to be heard. And I DO look at that as >an open door to do a some PD advocacy. > >In a rush - contractor due any minute - sorry about the typos... > >Barb Mallut >[log in to unmask] >-----Original Message----- >From: Edward Kleinmeyer <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Thursday, January 06, 2000 9:36 PM >Subject: symptoms of PD > > >I go to neuroligest tomorrow for testing. Thought maybe someone >could tell me, I have been having trouble chewing and my dentures >don't fit well any more,also I seem to be choking a lot . I have >had my dentures relined in the last 8 months but I seem to be >right back where I was before. Is this just another symptom? I'll >admit that I am scared. Shirley