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Perry, Thanks for your note. Am taking care of Grandson, who loves the computer, I'm very interested in what you talked about and would like to have such information. I'll get back to this after awhile. Bernie At 02:07 PM 1/9/00 -0500, you wrote: >Bernie: > >Congratulations on your good work. The millennium is off to a good start >here too. > >I have been a Parkinson's representative on the DC Coalition for Long Term >Care for a couple of years. This group has been shepherding a bill to >regulate quality standards for Assisted Living facilities in DC (24 States >have such regulation). The bill passed the City Council unanimously this >week on the first vote. > >In case you dont already have them, I have obtained some materials on >Assisted Living Quality that I can refer you to. I did learn that the >Assisted Living Federation of America does address PD specifically in its >training programs, but it may be a good idea to examine the content and >adequacy of those programs. > >In addition, this week I attended the NIH - PD research planning task force >meeting this week which has been discussed on the listserve. It is very >encouraging to see the commitment and enthusiasm of the NIH and the >scientists for accelerating PD research. You will hear more on this one. > >A third positive (it has truly been a good week) is the Letter I received >from the new DC Insurance Commissioner who indicated that he is more actively >investigating the issue of "caps on prescription drug coverage" by health >plans. Working with Virginia and Maryland he is looking for fair and >equitable solutions that recognize rising drug costs as well as consumer >needs. I have been fighting the imposition of caps by Kaiser Health Plan so >its good to have an ally. Prescription drug coverage is a National issue of >importance to PD, so you will hear more on this one too. > >Perry Cohen >(53/49/--) > > To: [log in to unmask] > Subject: A New Facility > From: "Bernard Barber,Ph.D." <[log in to unmask]> > Date: Sat, 8 Jan 2000 11:00:47 -0500 > Reply-To: "Parkinson's Information Exchange Network" ><[log in to unmask]> > Sender: "Parkinson's Information Exchange Network" ><[log in to unmask]> > >> >>The New Millennium is starting out in a very positive way for PWP and me. >> >>As many folks know I have been spending a great deal of time and effort in >trying to have the Assisted Living Facilities and Care Centers address the >specific needs of PWP. Monday an announcement from the Desert Winds, >Assisted Living Community, 20545 N. Lake Pleasant Road, Peoria, AZ 85382, >623-322-0600 will indicate that they will specialize in Parkinson's Disease >Residents. Licensed Nurses and Care givers have been trained to meet the >needs of PWP and their spouses. Cassandra Gatz, Executive Director of >Desert Winds, whose Father suffered with Parkinson's for the past twenty >years, has a personal desire to help in the care and hopefully the cure of >PD. The Arizona Office of the APDA at the University of Arizona, the folks >at the Muhammad Ali Parkinson Research Center, and The Arizona Chapter of >NPF, have contributed to this effort. >> >>Additional information may be obtained by writing or calling Cassandra at >the aforementioned address and phone number. > >Bernie Barber >> >