 |
 |
Art: Below is the list of participants in the planning meeting provided by NIH. There were 4 PWP at the NIH Planning Task Force meeting: Joan Samuelson, Jeff Martin, Marty Tuchman (I consider a spouse of a patient as a PWP) and myself. In addition there were 4 lay officials of PD organizations and about 40 other scientists and staff. The Steering Committee has 6 members (1 PWP-- Jeff Martin) plus Dr. Fischbach. The text Mr. Hoffheimers "correction" was not altered to reflect this information. Name Location Focus Aidekman, Kenneth Parkinson's Unity Walk EP Advocate Ansel, Beth NIDCD F NIH Burke, Robert E Columbia P Cell Death Caron, Marc Duke T DNB Chesselet, Marie UC Los Angeles P Circuits Cohen, Perry PDF T Advocate Cordy, Jim Parkinson's Alliance T Advocate Dawson, Ted Johns Hopkins . Steering DeLong, Mahlon Emory P .Steering/Circuits Elliot, Robin PDF EP Advocate Fahn, Stanley Columbia T Best Practices Federoff, Howard U Rochester T Surgical Approaches Finkelstein, Judy NIA P Motor Systems Fischbach, Gerry NINDS . Steering Fischbeck, Kurt NINDS P Genetics Gerstel, Joel APDA T Advocate Greenamyre, Tim Emory T Neuroprotection Hallett, Mark NINDS T Clinical Trials Hardy, John Mayo Clinic Jacksonville E Genetics Heemskerk, Jill NINDS EP Mitochondria Heetderks, Bill NINDS T Deep Brain Hoffheimer, Larry NPF EP Advocate Jessell, Tom Columbia . Steering Kieburtz, Karl U Rochester T Best Practices Kirshner, Annette NIEHS NIH Koller, William U Miami T Deep Brain Langston, William Parkinson Institute T Best Practices Lansbury, Peter Brigham & Women's P Protein Aggregation Lozano, Andres University of Toronto T Surgical Approaches Marek, Ken Yale T Biomarkers Marler, John NINDS T .Steering/Clinical Trials Martin, Jeff Shea-Gardner .Steering Mayeux, Richard Columbia NY E Epidemiology McKay, Ron NINDS P Stem Cells Molinoff, Perry Bristol Myers T Neuroprotection Murphy, Diane NINDS EP Neurodegeneration Olanow, C. Warren Mt Sinai CUNY T Cell Death Oliver, Gene NINDS NIH Perlmutter, Joel Washington U E Biomarkers Price, Donald Johns Hopkins P Animal Models Rosenthal, Arnon Genentech P Stem Cells Samuelson, Joan PAN T Advocate Shoulson, Ira Rochester T .Steering/Clinical Trials Slewett, Nathan NPF EP Advocate Tanner, Caroline Parkinson's Institute E Epidemiology Trojanowski, John U Penn P Molec Path Tuchman, Marty Parkinsons Alliance T Advocate Wichman, Allison NINDS T Ethics Wise, Brad NIA NIH Zigmond, Michael U of Pittsburgh T DNB KEY (subgroups) E Etiology P Pathology T Treatment