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Don, I had the surgery done 4 years ago when it was truly experimental you might want to read my story. Charles Myers has his story at the same site. The site is called the hithgang (the hole in the head gang)> I will be speaking at a support group in So. Nevada if you live anywhere close January 28th. http://www.geocities.com/SoHo/Village/6263/pienet/hithgang/hitjaner.html ----- Original Message ----- From: Donald R Boyer <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, January 18, 2000 7:04 AM Subject: Neurosurgery- DBS > I need some help. Where can I find a web site providing decent and timely > info on the not yet FDA approved Subthalmic DBS procedures.? > I was diagnosed in 1984 and am "officially" classified as Advanced P.D. > My medication every 6 hours is a 50\100CR, 1.25 mirapex,and 200 tasmar 3 > times a day, amantadine 1 per day at bed. My Down times are more frequent and > deeper. I know my meds are not able to do the job. > > Havealmost no tremors--most of the problem is severe rigidity, some dystonia > and dyskinesia. I am considering the subthalmic DBS surgical procedure; I > like the idea that it can be reversed but am concerned about bleeding and etc. > Any web sites or personal expereiences would be appreciated.