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this is for donald boyer and wife... I dont know if this is any help but it is something that I have researched for a friend of mine whose meds are not working very well anymore too.. http://www.neurohaven.com/index.htm this address I found first last year.. I may have other sites for you but off the top of my head, these two are the ones I remember first. the cedars sinai hospital one is an excellent one.. ----- Original Message ----- From: Donald R Boyer <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, January 18, 2000 7:04 AM Subject: Neurosurgery- DBS > I need some help. Where can I find a web site providing decent and timely > info on the not yet FDA approved Subthalmic DBS procedures.? > I was diagnosed in 1984 and am "officially" classified as Advanced P.D. > My medication every 6 hours is a 50\100CR, 1.25 mirapex,and 200 tasmar 3 > times a day, amantadine 1 per day at bed. My Down times are more frequent and > deeper. I know my meds are not able to do the job. > > Havealmost no tremors--most of the problem is severe rigidity, some dystonia > and dyskinesia. I am considering the subthalmic DBS surgical procedure; I > like the idea that it can be reversed but am concerned about bleeding and etc. > Any web sites or personal expereiences would be appreciated. >