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Well Stated Brian, I totally agree with your comments. Nigel 45/12 ----- Original Message ----- From: Brian Collins <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, January 20, 2000 2:27 AM Subject: Re: Sinemet **** > On Wed 19 Jan, Barbara Patterson wrote: > > Please do not make any changes in the dose or timing or amount of medication > > (prescription or over-the-counter) you take until you have discussed it > > with your physician. These are serious powerful medications designed to > > alter the chemistry within the brain. We should all be aware of the > > potential for disaster that could occur if we abuse/misuse these drugs. > > So, again...please consult your physician BEFORE making any changes. Barb > > > > =========================================================================== > > Barbara Patterson [log in to unmask] > > HSC 2J22 905-525-9140, ext. 22403 > > School of Nursing > > =========================================================================== > > > > > > > Dear Barbara, > I am fully in agreement with your warning about the need for caution when > making changes in one's meds, and the need to discuss any concerns with your > specialist, but (and you knew that "but" was coming, didn't you), don't you > see a need for an alternative viewpoint on such subjects, if only to keep > these paragons of expertise on their toes? > I am fully aware that some Members of the Establishment take a dim view > of some of the things that I write, but try for a moment to see the subject > from the other side: Many of the people who write to the list are suffering > the most distressing symptoms, and they have been round the loop where the > Specialist has pronounced judgement. (Much of the time, it is the Specialist > who got them into the trouble in the first place!) Surely you must concede > that some experts are not as expert as we would like them to be. > And what gives me the right to question the experts, you may ask. Well, > 21 years of taking levadopa (and I am still taking about 800mg per day) > has tended to teach me a few things, which I try to pass on to you, assuming > that there is room in your world for an occasional new concept. > You may wonder at the stormy sessions that occur when I go to one of > my regular 6-monthly meetings with my neurologist. Nothing could be further > from the truth; I have the highest respect for him, and the information > which he has given me has been invaluable in my quest to try to > understand what is Really going on. > If you stand back far enough, doesn't the whole thing look pretty > silly? The 'Art' of how to take your meds, when to take them, and in > what form to take them, probably took a few lectures late on a Friday > afternoon during one of the many years which it took to train these > people. For me, however those very same subjecs have been occupying my > thoughts and dominating my life for the past 22 years. In my experience, > the best neurologists are those who have the humility to recognise that > maybe we can teach them some occasionally useful facts. > > My best regards to you all > > -- > Brian Collins <[log in to unmask]> (60/ > > 39/34) >