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Thanks for your input. I started taking vitamin E about a week ago. I was wondering why I have not had those nasty cramps lately. So, I guess it does work and that is one symptom out of the way. Thanks again, Bill Andrews [log in to unmask] Barb_MSN wrote: > > Bill A... > > I've had PD for approx.. 25 years, and toe cramping was > one of the very first symptoms I experienced, tho for the > first several years no one, including any of the MDs I > saw ever tied the cramps in with PD (at the time I was > searching for a diagnosis I was in my early 30s and no > MD would even THINK of someone under 60 as having > that "old persons disease, Parkinson's!). > > The toe cramps were severe, and were becoming a nightly > nightmare because they started up the moment I lay down > to sleep and struck again upon my awakening. (YIKES! > Owie!!) > > After living with the toe cramps and other vague symptoms > for 7 years, I was Dx's with PD, and it was at THAT time > I began looking for treatments for individual symptoms such > as the toe cramps, since I knew there was no cure (YET) > for the disease itself. > > I discovered that vitamin E, taken daily, two to three times > a day (depending upon my daily needs and condition), in > the amount of 800-ICUs per dose (and not exceeding > 1600-ICUs daily) <an arbitrary number I've set for myself > since I noticed no additional benefits when I took more > than 1600-ICUs a day> stopped my from suffering ANY > daily toe cramps completely. > > I also found that any time I dropped below that arbitrary > figure for more than a coupla days, the cramps returned, > so I continue taking 1600-ICUs of vitamin E each day and > have no toe OR leg cramps whatsoever, no matter what > other PD symptoms I might have at any given time. > > NOTE: Vitamin E, taken in a large daily dose slows one's > blood clotting time, so must not be taken in large daily > doses if one's taking Cumidin (spelling?) or other blood > thinners or anti-clotting drugs. > > Barb Mallut > [log in to unmask] > -----Original Message----- > From: Bill Andrews <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Thursday, January 20, 2000 9:16 AM > Subject: Re: Calf muscles ? / A neurologist open to learning > > >My doc gave me a Rx for Quinine Sulfate to be taken at bedtime or > >whenever I start to cramp. It does seem to help. I normally > cramp up > >when I go to bed at night. > > > >Renee Marton wrote: > >> > >> Hi all. I was reading Ivan's letter about swithching to dr. > Boothby and also > >> mentioning cramps in calves and toe curling. My mother has > this problem alot. > >> Can anyone mention specific things that they do to relieve > this, or even > >> prevent them (assuming one can feel them "coming on")? > Thanks.l Renee > >> Marton (PT CG for Judy --75/63)