hi cyber-dad barb patterson said that some of your listmail was bouncing so i am sending these TV replies to you in case you missed them and please consider my reaction to be a loud 'Yowza!' sis ---------------------------------------------------- >>> Posting number 74977, dated 20 Jan 2000 11:39:10 Date: Thu, 20 Jan 2000 11:39:10 -0500 From: Don McKinley <[log in to unmask]> Subject: LIST----TV TIP OF THE DAY CLEAN YOUR WALKS OF SNOW. i got a call from our T.V station about PD. he said he has done his home work on it and me. asked if i would go on and tell what i know. said he talked to my nero and others. said 31 years is long time and thought i could give lot of good advice. am not sure if i am qalliivife. also i would not talk on meds. as all of is different. all i know is what i have gone through. M.J.F. is begging to learn what it is like. so i would let him know. so those on the list that know me do think i can represent us whit good advice. (Greg) you are initialed to u.r opine but one thing i have learned is to keep a tight time on taking your meds. and not to change which out your doc. advice. i am not flaming you. imo as you have yours. good it way be working for you but what is the best for the most. just be cause i am only 75 and had PD for 31 years does not mean i can and know it all friends? i am a little down now. so if most think i can do us any good i will try it. so i am asking for help. FROM THE LIST. BEST MEDS FOR PD IS WE WILL SERIFE(DUMB KEYBOARD) retired,tinkerman,repair man, 1/2 a-- inventor I.Y.Q. DON AND VIVIAN LOVE OF MY LIFE-54 [log in to unmask] ---------------------------------------------------- >>> Posting number 74991, dated 20 Jan 2000 12:50:31 Date: Thu, 20 Jan 2000 12:50:31 -0500 From: janet marie paterson <[log in to unmask]> Subject: FWD: LIST----TV [translated] [from cyber-dad don mckinley] TIP OF THE DAY: CLEAN YOUR SIDEWALKS OF SNOW I got a call from our T.V station manager about PD. He said he has done his homework on both it and me. He asked if I would go on the air and talk about what I know. He said he's already talked to my neuro and to others. He said 31 years is a long time with PD and thought I could give a lot of good advice. I am not sure if I am qualified. Also, I would not talk about specific medication dosages, since all of us are different. All I know is what I have gone through. M.J.F. is begging to learn what it is like, so I would let him know. So, to those on the list who know me, do you think I can represent us with good advice? Greg, you are entitled to your opinion, but one thing I have learned is to keep a tight time on taking your meds. and don't change them without your doctor's advice. I am not flaming you. I have my opinion as you have yours. If what you are doing works for you, that's good, but it may not be what is best for the majority. Just because I am only 75 and have had PD for 31 years does not mean I know it all. Friends? I am a little down now, so if most of you think I can do us any good, I will try it, so I am asking for help FROM THE LIST. BEST MEDS FOR PD IS WE WILL SURVIVE retired tinkerman repair man 1/2 a-- inventor I.Y.Q. [say it fast!] DON AND VIVIAN THE LOVE OF MY LIFE FOR 54 YEARS Don McKinley <[log in to unmask]> ---------------------------------------------------- >>> Posting number 75021, dated 21 Jan 2000 10:55:31 Date: Fri, 21 Jan 2000 10:55:31 -0500 From: Ivan M Suzman <[log in to unmask]> Subject: Re: LIST----TV Don, Please try to get a high quality videotape of the show. I want to see you on camera! Good luck, and congratulations! IVAN ---------------------------------------------------- >>> Posting number 75022, dated 21 Jan 2000 11:12:20 Date: Fri, 21 Jan 2000 11:12:20 -0500 From: Hilary Blue <[log in to unmask]> Subject: Re: LIST----TV Don, i think this is wonderful news, and i cant think of anyone more qualifed - by wisdom, knowledge and experience! and thanks ivan, for reprinting this - i missed it yesterday. hilary blue (51,33,24) ---------------------------------------------------- >>> Posting number 75026, dated 21 Jan 2000 13:03:59 Date: Fri, 21 Jan 2000 13:03:59 -0500 From: Cathy Morse <[log in to unmask]> Subject: Re: LIST----TV Don, I definately think you should do this. You may not, as you say, "know it all", but i would say 31 years of expereince dealing with pd makes you an expert in my book. Hope today is better for you than yesterday. Cathy ---------------------------------------------------- >>> Posting number 75033, dated 21 Jan 2000 14:32:43 Date: Fri, 21 Jan 2000 14:32:43 -0500 From: Barb_MSN <[log in to unmask]> Subject: Re: Your TV Apperience Hey Don.... Way to GO! In the grand old tradition of the stage, I was gonna tell you to "Break a leg," but remembering your penchant for climbing up ladders to repair the roof and other home repair jobs you regularly tackle, I figured THAT should be the very LAST thing anyone should ever say to YOU <grin> (Just teasing ya, Don) Sooooo.. here's some advice which is actually valuable for you 'n those other PWPs who plan on making TV appearances: Wear a solid color suit or shirt and slacks when appearing before the camera as busy patterns tend to distract the typical viewer 'cause by some trick of the camera, busy patterns appear to MOVE (You'd never see OPRAH wearing plaid when she's filming!) <smile> Barb Mallut [log in to unmask] Hmmm... (thinking)...Actually, considering the nature of PD, I wonder if a Parkie with a tremor and wearing a plaid shirt, would look like they WEREN'T moving, presuming the plaid of the shirt would VISUALLY counter balance or in some other way negate the body movement caused by the disease. ---------------------------------------------------- >>> Posting number 75042, dated 21 Jan 2000 22:21:37 Date: Fri, 21 Jan 2000 22:21:37 -0500 From: Eleanor Noone <[log in to unmask]> Subject: Re: LIST----TV [translated] [from cyber-dad don mckinley] In a message dated 1/20/00 1:50:47 PM EST, [log in to unmask] writes: <<Friends? I am a little down now, so if most of you think I can do us any good, I will try it, so I am asking for help FROM THE LIST. >> Don, who better to be a spokesman for PD than you. Go for it. Eleanor CGMom ---------------------------------------------------- >>> Posting number 75044, dated 21 Jan 2000 22:37:47 Date: Fri, 21 Jan 2000 22:37:47 -0500 From: Leo Fuhr <[log in to unmask]> Subject: Re: LIST----TV [translated] [from cyber-dad don mckinley] Don, I encourage you to say "YES" to the opportunity to be interviewed about life with Parkinson's. You just might encourage a pwp or a caregiver or friend of a pwp who is discouraged about life with Parkinson's........ just like you already have encouraged this pwp with your e-mails to PIEN. GO FOR IT!!! Jeanette Fuhr 49/47/44? ---------------------------------------------------- >>> Posting number 75045, dated 22 Jan 2000 04:36:00 Date: Sat, 22 Jan 2000 00:04:36 -0500 From: KEn Becker <[log in to unmask]> Subject: Re: LIST----TV [translated] [from cyber-dad don mckinley] Don, GO for it! You deserve to be famous! Ken (W H) ---------------------------------------------------- >>> Posting number 75054, dated 22 Jan 2000 09:20:35 Date: Sat, 22 Jan 2000 09:20:35 -0500 From: Barbara Patterson <[log in to unmask]> Subject: Re: LIST----TV [translated] [from cyber-dad don mckinley] Comments: cc: Don McKinley <[log in to unmask]> For some reason, Don's email account is bouncing back list messages. In order for him to know that we would like for him to speak for us, I suggest you send an email to him at: Don McKinley <[log in to unmask]> Barb ---------------------------------------------------- janet paterson 52 now / 41 dx / 37 onset a new voice: http://www.geocities.com/janet313/ 613 256 8340 PO Box 171 Almonte Ontario Canada K0A 1A0