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Dear Maryhelen and other advocates: Corrected final draft follows below. IMS ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 50/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 10 deg. F :-) ******************************************************************** --------- Forwarded message ---------- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] Date: Tue, 25 Jan 2000 02:40:01 -0500 Subject: Re: ARIZONA - TELL THE COMMITTEE MEMBERS/ advocacy letter Message-ID: <[log in to unmask]> Maryhelen and other PD advocates Please print copy, forward and use as needed. Good luck with this important research initiative. Sincerely, Ivan Suzman Portland , Maine Dear ladies and gentlemen of the Arizona Legislature: Please fund this pioneering bill for the $1,ooo,ooo.oo (one million dollars) requested for research on Parkinson's Disease. I am a friend of my colleague and fellow long-time PD patient-advocate, Maryhelen Davila of Phoenix. I am 50, in my 14th year of devastation, having had Young Onset Parkinson's Disease problems since 1986. I am stopped by PD, homebound here in the snows of Maine. I face paralysis whenever any of eight round-the-clock doses of medicines fail to work. With this immobility comes unimaginable pain, and muscle clenching from head to foot. This includes the muscles inside my tongue,and in the muscle pulling the eardrum, in my middle ear. Please honor the memory of the great Arizonan, MO UDALL, and the living work of Mr. Muhammad Ali, who graces your extraordinary state with his research center at the Barrows Hospital. Please make PD a PRIORITY. The diagnosis rate has been estimated to be one person every nine minutes in the USA ! I have worked for six years with Maine's house, senate, governor, and US congressional delegations. I have been asked to author this April's upcoming Governor's Parkinson's Awareness Resolution. A copy of my 9/28/99 Testimony for the Appropriations Committee of the US Senate, about living daily with Young Onset Parkinson's Disease, can be obtained by contacting Linda Lyon, senior Aide to US Senator Olympia Snowe. Ms. Lyon can fax a copy of this document to you ; please call her at Senator Snowe's office here in Porland, ME, 207-874-0883. Thank you for helping us conquer this slowly killing disease, whose origins are still unknown. SIncerely, (Prof.) Ivan Mfowethu Suzman Portalnd, Maine (207) 797-8488 On Mon, 24 Jan 2000 17:32:21 EST [log in to unmask] writes: >DEAR PD RESEARCH ADVOCATES OF AZ > >