Print

Print


Mary Ann, Hilary, et al....

The magic words when for a reader (a "bookie?"  Naaaaw) <grin>
who's suffering PD-vision problems (no matter what type of book
turned them on in their pre-PD days_ is "Reader's Digest LARGE
TYPE magazines!  ALSO - lotsa book stores carry large print
nowadays (thank goodness) however, large-type magazines are easier
for Parkie-fingers to hold cause they're not bulky or heavy as
magazines.

I've changed my reading habits tremendously over the past 3 or 4
years to accommodate my degenerating vision and have discovered
the large-type to be a real boon.  I read every single night for
about 12 hour to 45 minutes, with classical or country music on my
bedside radio.   The kitties sprawl  across the bed next to me as
I read.

Bed time, for ME, is prime time!  It's blessedly quiet, I'm
relaxed and comfy, and I enjoy this special time of the day more
than any other... BTW, I ALWAYS  wear reading  glasses (tho I used
to get along just fine with one pair of tri-focals, today, for
safety's sake, I have three different-lensed glasses to wear---
reading only, distance only, and bi-focals to wear at home, only)

I've stopped being a "reading snob," too,  'cause there was a time
years ago that I'd NEVER have admitted to reading\, much less
ENJOYING "Reader's Digest! <faking a becoming blush> (lol)
However, PD has long-since "desnobified" me!   In fact. upon
reflection, PD has pounded with some success at lotsa my little
vanities.

Hmmmm.... I'm wandering and I didn't mean to do that right now
'cause I've got a good book I'm starting to read - "Angelas Ashes"
(regular print size, so I'm using a magnafying glass!)

One last thing to make reading easier - I DOUSE my eyes with a
good (meaning expensive) eye-moisurizer... and that feels great,
AND makes my vision noticibly clearer for a while.

G'nite to you all, and happy reading!

Barb Mallut (the "original bookie"!) <LOVE  a good book - OR a
trashy romance novel occasionally) <wee smirk>
[log in to unmask]


-----Original Message-----


From: Hilary Blue <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, January 28, 2000 2:55 PM
Subject: Re: NEWS-Parkinson's hinders patients' ability to
distinguish contrast


>Once again i can identify completely.. Reading - i am a librarian
by
>profession - i used to read     10-12 books a week - then i
started reading
>moostly children'se books - at first i  used to saay they are
well written
>good stories and have happpy endings - then i realised i was
bluffing myself ,
>it was really the large print i was seeking. Aned ulverscroft
books were too
>heavy. Now i cant even cope wit  Harry Potter !!  My hands cant
hold the
>book, my eyes cant focus on the print, and my mind cant
concetrate o'n the
>story - gets bored and wanders off on its own. I've started
trying to knit
>again - keeps my hands busy, dont need to see what i'm doing like
crochet, and
>doesnt occuppy my mind which cann go off on iots fligihts of
fancy! 'And i
>always know when i nedd my mesds without a clolck - i cant see
the computer
>screen/ And the percentage of un corroected typos goes up - i
simply dont see
>them. but when my meds kick in, i see perfectly (with my glasses)
my neuro
>thinks i'm crazy, wouldnt support my request to see a
neuro -ophthalmolgist-
>but during off times i cant even distinguish the letters on the
keyboard!!!
>i've gone thru all those phases and synptoms since  i began
writing this letter
>hilary blue
>
>Mary Ann Ryan wrote:
>>
>> Barb wrote:
>> It's not that they don't recognize my visual difficulties. but
>> > rather they lump it under the "Mom's getting older"category.
And
>> > while I  DO admit to having a birthday once a year and those
years
>> > ARE mounting up <GULP>, at 57 I don't consider myself THAT
old!
>>
>> Barb brings up a major complaint of mine - that when folks get
older they
>> should *expect* to be sick.  I'm 55 and have **no** vision
problems.  In
>> fact, I'll bet most of the caregivers on this list don't have
the visions
>> problems described in Derek's article.  Which means that,
clearly,
>> difficulty distinguishing contrast is a specific problem
associated with
>> PD - and not age.
>>
>> My husband, Jamie, has had such terrible problems reading that
he no longer
>> is able to enjoy what used to be his favorite pass-time.  He's
been seen by
>> a Neuro-opthalmologist who could offer no solution to his
problem.  Jamie's
>> neurologist just shakes his head when Jamie mentions his visual
>> difficulties.
>>
>> I sincerely hope that active research continues in this field.
It may be
>> that there is a rather simple solution to this problem - at
least that's my
>> hope.   It would be wonderful if my husband could read again.
>> -----
>> God bless
>> Mary Ann (CG Jamie 60/20)