 |
 |
this is audrey.. and yes, I did know that... only I could * have* read that many hours in a row :)) I have been up all night catching up on my emails and reading the messages .. so I too am not perfect when it comes to typos and transpositions ( dyslexia ) lol ----- Original Message ----- From: Barb_MSN <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, January 29, 2000 12:24 AM Subject: Re: NEWS-Parkinson's hinders patients' ability to distinguish contrast > Errrr.... I should NEVER write to the List when it's past midnite! > YIKES - I hope y'all will excuse the number of typos in this > message! Heck - I've set a new "typo record" tonite! > > Make that I read for about a 1/2 HOUR to 45 minutes each nite, > 'kay? > > And you're all smart enough to translate what I typed as opposed > to what I MEANT to type, right ? <LOL> > > Barb Mallut > [log in to unmask] > -----Original Message----- > From: Barb_MSN <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Saturday, January 29, 2000 12:08 AM > Subject: Re: NEWS-Parkinson's hinders patients' ability to > distinguish contrast > > > >Mary Ann, Hilary, et al.... > > > >The magic words when for a reader (a "bookie?" Naaaaw) <grin> > >who's suffering PD-vision problems (no matter what type of book > >turned them on in their pre-PD days_ is "Reader's Digest LARGE > >TYPE magazines! ALSO - lotsa book stores carry large print > >nowadays (thank goodness) however, large-type magazines are > easier > >for Parkie-fingers to hold cause they're not bulky or heavy as > >magazines. > > > >I've changed my reading habits tremendously over the past 3 or 4 > >years to accommodate my degenerating vision and have discovered > >the large-type to be a real boon. I read every single night for > >about 12 hour to 45 minutes, with classical or country music on > my > >bedside radio. The kitties sprawl across the bed next to me as > >I read. > > > >Bed time, for ME, is prime time! It's blessedly quiet, I'm > >relaxed and comfy, and I enjoy this special time of the day more > >than any other... BTW, I ALWAYS wear reading glasses (tho I > used > >to get along just fine with one pair of tri-focals, today, for > >safety's sake, I have three different-lensed glasses to wear--- > >reading only, distance only, and bi-focals to wear at home, only) > > > >I've stopped being a "reading snob," too, 'cause there was a > time > >years ago that I'd NEVER have admitted to reading\, much less > >ENJOYING "Reader's Digest! <faking a becoming blush> (lol) > >However, PD has long-since "desnobified" me! In fact. upon > >reflection, PD has pounded with some success at lotsa my little > >vanities. > > > >Hmmmm.... I'm wandering and I didn't mean to do that right now > >'cause I've got a good book I'm starting to read - "Angelas > Ashes" > >(regular print size, so I'm using a magnafying glass!) > > > >One last thing to make reading easier - I DOUSE my eyes with a > >good (meaning expensive) eye-moisurizer... and that feels great, > >AND makes my vision noticibly clearer for a while. > > > >G'nite to you all, and happy reading! > > > >Barb Mallut (the "original bookie"!) <LOVE a good book - OR a > >trashy romance novel occasionally) <wee smirk> > >[log in to unmask] > > > > > >-----Original Message----- > > > > > >From: Hilary Blue <[log in to unmask]> > >To: [log in to unmask] <[log in to unmask]> > >Date: Friday, January 28, 2000 2:55 PM > >Subject: Re: NEWS-Parkinson's hinders patients' ability to > >distinguish contrast > > > > > >>Once again i can identify completely.. Reading - i am a > librarian > >by > >>profession - i used to read 10-12 books a week - then i > >started reading > >>moostly children'se books - at first i used to saay they are > >well written > >>good stories and have happpy endings - then i realised i was > >bluffing myself , > >>it was really the large print i was seeking. Aned ulverscroft > >books were too > >>heavy. Now i cant even cope wit Harry Potter !! My hands cant > >hold the > >>book, my eyes cant focus on the print, and my mind cant > >concetrate o'n the > >>story - gets bored and wanders off on its own. I've started > >trying to knit > >>again - keeps my hands busy, dont need to see what i'm doing > like > >crochet, and > >>doesnt occuppy my mind which cann go off on iots fligihts of > >fancy! 'And i > >>always know when i nedd my mesds without a clolck - i cant see > >the computer > >>screen/ And the percentage of un corroected typos goes up - i > >simply dont see > >>them. but when my meds kick in, i see perfectly (with my > glasses) > >my neuro > >>thinks i'm crazy, wouldnt support my request to see a > >neuro -ophthalmolgist- > >>but during off times i cant even distinguish the letters on the > >keyboard!!! > >>i've gone thru all those phases and synptoms since i began > >writing this letter > >>hilary blue > >> > >>Mary Ann Ryan wrote: > >>> > >>> Barb wrote: > >>> It's not that they don't recognize my visual difficulties. but > >>> > rather they lump it under the "Mom's getting older"category. > >And > >>> > while I DO admit to having a birthday once a year and those > >years > >>> > ARE mounting up <GULP>, at 57 I don't consider myself THAT > >old! > >>> > >>> Barb brings up a major complaint of mine - that when folks get > >older they > >>> should *expect* to be sick. I'm 55 and have **no** vision > >problems. In > >>> fact, I'll bet most of the caregivers on this list don't have > >the visions > >>> problems described in Derek's article. Which means that, > >clearly, > >>> difficulty distinguishing contrast is a specific problem > >associated with > >>> PD - and not age. > >>> > >>> My husband, Jamie, has had such terrible problems reading that > >he no longer > >>> is able to enjoy what used to be his favorite pass-time. He's > >been seen by > >>> a Neuro-opthalmologist who could offer no solution to his > >problem. Jamie's > >>> neurologist just shakes his head when Jamie mentions his > visual > >>> difficulties. > >>> > >>> I sincerely hope that active research continues in this field. > >It may be > >>> that there is a rather simple solution to this problem - at > >least that's my > >>> hope. It would be wonderful if my husband could read again. > >>> ----- > >>> God bless > >>> Mary Ann (CG Jamie 60/20) >