Oops, another senior moment--
I'm sorry; I copied an old message for the web sites, and forgot to
change the address.
Please excuse the error,
Charlotte
--------------------------------
Curie:
Some of these may have changed; the first one is the same as the e-mail
I sent on subscribing to the PIE net, which you can search the archive
for DBS surgery when you join. If you don't want to get all the heavy
e-mail from this list (there is a lot on nonsense as well as good
stuff), then set it for NOMAIL or DIGEST;
the next one is the site that I got SSDI info from--John Cottinghams
site.
DRAFT WEB
SITE LIST
Great Archives:
* http://www.geocities.com/SoHo/Village/6263/pienet/subs/(Janet's web
site)
janet paterson <[log in to unmask]> ( e-mail Janet on how to
get to archives for this listserv)
Parkinson's Information Exchange
<[log in to unmask]>
[log in to unmask]
* John Cottinghams Homepage Archive
http://www.ionet.net/~jcott/homepage/archive/103.html
----------------------------------------------------------------------------------------
* http://james.parkinsons.org.uk/search.htm
* Awakenings
http://www.parkinsonsdisease.com/
* The neuro website at harvard is an excellent resource:(may have
changed/moved, but should get you to it)
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/pdmain.html#mainmenu
a psychosocial article is there along with an
algorithm on managing PD,
and some excerpts from the young parkinson's
handbook and a caregiver's handbook
* http://my.webmd.com/topic_summary_article/DMK_ARTICLE_40066
*
http://www.intelihealth.com/IH/ihtIH?t=333&st=333&r=EMIHC000&c=234625
-------------------------------------------------------
Parkinson's Institute
Website: http://www.parkinsonsinstitute.org/index.html
Address: 1170 Morse Avenue, Sunnyvale, CA 94089
Phone: 408-734-2800 or 800-655-2273 (Canada) or 800-786-2978 (US)
Fax:
408-734-8522
E-mail: [log in to unmask]
An independent, not-for-profit organization conducting patient care
and
research activities in the
neurological specialty area of movement disorders.
************
* Addresses for national PD organizations in the USA
NEW APDA address---
The American Parkinsons Disease association (APDA)
1250 Hylan Blvd., Suite 4B, Staten Island, NY 10305
http://www.apdaparkinson.com/ (includes
directory of support
groups)
Fax: (718) 981-4399
E-mail: [log in to unmask]
TOLL FREE: 1-800-223-2732 [1-800-223-APDA] National
Office
To reach the nearest A.P.D.A. Information
and Referral Center
from any
location in USA, DIAL
TOLL FREE: 1-888-400-2732 ALSO:
APDA Young-Onset Information & Referral
Center
2100 Pfingsten Road, Glenview, IL 60025
email [log in to unmask]
http://members.aol.com/apdaypd
1/800-223-9776
*********
National Parkinson Fndtn.,Inc.
1501 N.W. Ninth Ave. , Bob Hope Road, Miami,FL 33136-1494
(800) 327-4545 e-mail: [log in to unmask] Fax: 305
548-4403
http://www.parkinson.org
*********
Parkinson's Action Network - PAN
Website: http://www.parkinsonsaction.org
Address:840 3rd St
Santa Rosa, CA 95404
Phone: (707) 544-1994 or (800) 850-4726 Fax: (707) 544-2363
E-mail: [log in to unmask]
OR
Capitol area office:
1001 Pennsylvania Avenue, Suite 850 North, Washington, DC 20004
Phone: (202) 628-2079 Fax: (202) 737-4242
E-mail: [log in to unmask]
A nationwide advocacy organization
*************
Parkinson's Disease Foundation - PDF
Website: http://www.pdf.org
Address: 710 West 168th St. Third floor - New York, NY 10032-9982
Phone: 212-923-4700 or 800-457-6676 Fax: 212-923-4778
E-mail: [log in to unmask]
OR
Midwest office:
833 West Washington Blvd., Chicago, IL 60607
Phone: 312-733-1893
United Parkinson's Foundation
NOW MERGED WITH THE PARKINSON DISEASE FNDTN.
***********
* National Institute of Health Research News Parkinson's Disease
http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
Other NIH Sites:
https://www-commons.cit.nih.gov/crisp/
http://www.nlm.nih.gov/databases/freemedl.html
http://www.nlm.nih.gov/medlineplus/
http://www.nlm.nih.gov/PubMed/
http://igm.nlm.nih.gov/
* AMA Publications
http://www.amapublications.com
