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I must say I agree. I have asked many times, "why so many organizations" The local PDF one is well run, but one large one would have more clout. Sorry it took me so long to answer. Nita Andres "Walter O." wrote: > After you read this, you may ask, "Are these your > ideas, or are you just ill advised?" They say ideas > come frrom one of three sources, from the > supernatural, from others,, or from within > ourselves. I don't lay claim to divine messages, > neither are these thoughts solely frrom within > myself. Rather, they are a confabulation from > within myself and what I hear from other PD > support group people. > There is a perceived need for better networking, > between the larger organizations and the local > Support Group (PWP, caregivers).Yesterday I met > with several relatively well informed leaders of a > PD support group.Their questions and comments > made me observe that they knew even less than I > about what is going on in the upper circles of those > who represent us. Are you satisfied with the > comunication and support you are getting at the > local level from these organizations. Legally, or > informally how can we increase our representation > at the higher levels of leadership. > Are the newsletters we receive interesting and > informative, or are they just house organs. When > were you or your support group asked for advice, > or helped in a practical way? Do you believe that > it is time to get professionals to represent us, using > principles of marketing, corporate identity and > awareness crusades,e.g.See the Avon Breast > Cancer Awareness Crusade material on the web > page. Why doesn't the upper leadership involve > local groups in planning agendas? > Let's open up the dialogue and comments. > Arguments are welcomed. > > _________________________________________ > This message was sent using Conectiv.net WebMail. > http://webmail.conectiv.net/