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This is not a pleasant topic, but since there was some discussion on the
list a while back, I thought it was worth posting.

Understanding Conflicts Is Key To Aiding End-Of-Life Decision-Making

NEW YORK, Feb 16, 2000 (Medical Tribune) - Caring for the terminally ill
has always been a
difficult time for physicians, patients and the patients' loved ones.
Families of patients often feel confused and helpless, which may lead to
a questioning of the health care team's intentions.

A new report suggests that identifying and understanding the sources of
conflicts between
doctors and patients' families may help ease the decision-making
process. Causes of conflicts
may include miscommunication between the doctor and the patient's
family, a difference in
values and a doctor's underestimation of the patient's quality of life.

"By considering this list of potential sources of conflict, clinicians
can identify more readily and accurately the causes of difficult
interactions with families of terminally ill patients regarding
decisions to limit treatment," said the study authors. The study was led
by Dr. Susan Goold, assistant professor of internal medicine and
associate director for ethics and health policy at the University of
Michigan Medical School in Ann Arbor.

The report is published in the February 16 issue of the Journal of the
American Medical
Association (www.jama.com).

"Almost all physicians have to deal with something like this at some
point in their career, but not necessarily often enough to make them
good at it," Goold said. "This is a way of hopefully getting the message
out to practicing physicians."

Goold and her co-authors used the term "differential diagnosis" to
describe their suggested
approach to these situations. Differential diagnosis is a term familiar
to many doctors. This
type of diagnosis involves determining which disease a patient is
suffering from by
systematically comparing clinical findings and symptoms to a list of
possible diseases.

In the paper, the authors suggested applying differential diagnosis to
end-of-life
decision-making. In this case, the conflict can be seen as "symptoms,"
while the possible
characteristics of both the physician and the patient's family are
possible "diseases." By
examining these "symptoms" and comparing them to the "diseases,"
physicians may better
understand the problems and how to work through them.

"Talking about death is hard for doctors as well as families," Goold
remarked. She teaches a
class in end-of-life decision-making for residents and medical school
students.

"Most doctors are trying to do the right thing in these situations,"
Goold added. "They're just not always sure what the right thing is."

Conflict and stress are very common when physicians and families are met
with the decision
of limiting care for terminally ill patients. "These kinds of situations
are not necessarily
preventable," Goold said. "When someone is in the hospital dying, a lot
of emotions come
out, a lot of baggage comes out, and you shouldn't necessarily expect
things to go smoothly."

Goold recommended that families talk about what to do before this
situation actually
happens. "A family member making a decision for a patient who knows that
they're doing
what the patient would want doesn't have nearly as much guilt involved
in making that
decision," she explained. She also added that the health care team sees
family members who
actually know what the patient wants as more credible decision-makers.

"Try to keep the lines of communication open within the family and
between the family and
the health care team," Goold stressed. "Don't let the relationships
break down."

Journal of the American Medical Association (2000;283:909-914)
©1999 InteliHealth, Inc. All rights reserved. All information is
intended for your general knowledge...

--
Judith Richards, London, Ontario, Canada
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