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Louis....

I've had PD for about 25 years, and had early brief signs of a
tongue tremor beginning at least 10 years ago.   By "signs" I mean
that the tongue tremor would only manifest itself when I was
extremely fatigued, and I was able to stop the tremors by
willpower.

Over the last two years, the disease has cropped up on my left
side (my primary side), and the tongue tremor is more active, and
has been accompanied by hand and arm tremors on the left side -
the latter is a "resting tremor." and the tongue tremor shows up
when I'm putting on make-up when my mouth tends to be open or when
I'm really stressed and am under the gun, for what ever the
reason.

Barb Mallut
[log in to unmask]

-----Original Message-----
From: Louis A. Rehm <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, February 28, 2000 11:42 AM
Subject: Symptoms?


>My mom (68, diag 64) has been diagnosed with Parkinsonism with
her
>neurologist leaning more towards Parkinson Plus (corticobasal
ganglion
>degeneration - CBGD).  She is experiencing some new trends lately
that I
>have not heard discussed before as long as I have been a member
of this
>list.
>
>The first is tongue tremors.  As far as I can tell, she has
started this
>- or at least it has become louder and more distinguishable - in
the
>last 4 months or so.  At first I thought her teeth were
chattering, but
>as I investigated, I saw that her tongue was actually in a
tremor, much
>as her hand goes into . . . up and down tremors.  I am trying to
track
>it more often, but it "seems" to be a constant involuntary
activity.
>This does not affect her eating.
>
>The second issue is her tendency to go into fits of hitting.
Once she
>becomes anxious, nervous, bothered, etc., she does go into
periods of
>severe mood swings, directing them at both myself and my father -
her
>care providers.  These mood swings completely changes her
attitude, she
>becomes irate and irritable at both of us for no reason -
everything we
>do is wrong.  She may go into uncontrollable fits of crying for
periods
>of time, and occasionally, stops crying to laugh, then goes back
to
>crying.  When she is in this state, she is starting to hit out at
anyone
>close to her.  These are not "soft" hits, but are intentional and
direct
>- aiming for parts of the body that will hurt.  When she sees the
hits
>dont hurt, she will make every attempt to pinch or whatever.
(There is
>no problem of this getting out of control at this time.)
>
>I am just trying to see if anyone else in the list has
experienced this
>or knows anything about this stage of the disease.  Hopefully,
someone
>will have some clue as to what is going on.
>
>This is a good and I have learned a lot from being on it.
>
>David
>46, full time caregiver
>Louis
>73, full time caregiver (2 heart attacks since this all started)