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Some web sites:

Well, for a start,

Talk to people at PAN, Parkinson's Action Network,  www.parkinsonsaction.org and
call for the materials on this topic 1-800-850-4726.
Also there is a great video and written material by Morton Kondrake, editor of "Roll
Call;"  The PBS video is from the series The National Desk, and this segment is
called "The Politics of Medicine."  Excellent!  His wife has PD, and he holds an
executive function, title?, with PAN.  He wrote a piece when PAN was struggling to
get the Udall bill passed, called "Cruel and Unusual"  or something very close to
that, again, excellent.

Online you can find a video and transcript from ABC's archive, on 20/20, 10/11/99,
(Monday), the host was John Stossel.  Joan Samuelson, President of PAN was featured,
as was Arlen Spector.  The topic of the politics of medicine and comparisons of the
success of one disease group winning a larger piece of the pie, or even more to the
point, how many disease groups are left in the shadows woefully underfunded, is
rather graphically explored and exposed I must say.  You can view this online.
www.abc.com I'm pretty sure.

Good luck,
Charlotte

Debby Hurlbert wrote:

> My son is writing a paper for college on the amount of government funding
> that pd gets compared to other diseases, such as AIDs, etc.  Do any of you
> know where he would look for statistics like this and other related
> information?  His teacher told them to write about something they felt
> strongly about so this is what he picked.  What a great kid, huh?  Thanks for
> any help.
>
> Debby H. 46/39 dx./33 onset

--
Charlotte A. Mancuso
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