Margie wrote to Linnea with some excellent suggestions, including joining
the CARE list--which I had also done privately, with instructions.
>You and your family are really having a difficult time of it right now. My
>first suggestion to you would be to join the CARE list, which is for
>caregivers of Parkinsonians. You'll find a number of people on the list
>dealing with similar problems. If you'd like, I'll send instructions for
>joining.
I agree with all that has been said in response to Linnea's post, and in
addition I would urge her not to be too hard on her mother, who is
apparently at her wit's end and unable to cope---a condition not unknown to
many of us. I would guess that she is not only angry, but also terrified
with the way their lives have been taken over by PD dementia, and at a loss
how to deal with the changes in her husband. Assuming that this has been a
basically loving relationship, it must be all the harder for her to
comprehend the changes in his behavior now. Is it possible that in
addition to PD dementia , he also has Alzheimer's ? Have any of the
anti-psychotic drugs been tried? (Clozaril, Zyprexa, Seroquel).
It is true that unless there can be some improvement, a NH placement may be
best--and safest--for all concerned, difficult as that may be.
Please, Linnea, DO join us on CARE as soon as you can--you have the
instructions and I hope to see you there soon!
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
