 |
 |
Hello Patricia, Parkinson's Disease Plus (PDP) is an "offshoot" of the regular Parkinsons - or so it seems to me. PDP is also referred to as Multiple System Atrophy (MSA). My mom has almost been diagnosed with Cortico BasalGanglia Degeneration (CBGD) a sub-category of Parkinson's Plus. I recommend that you read a "Differential Diagnosis of PD and Parkinsonism Plus Syndromes" at: http://www.ionet.net/~jcott/homepage/archive/091.html This was authored by Mark Stacy, MD & J. Jankovic, MD and very informative. A lot of what you are saying is symptomatic of what you have sounds like CBGD. This is a rare form of Parkinsons and there is not much information out there. Some stories and case histories of people that have had this - from a caregiver's point of view - can be found at: http://www.tornadodesign.com/cbgd You might read through this and see if anything there sounds like your particular case. I should warn you that reading these documents may depress you - at least it did for me. But most of us want to know the facts and these. There are mailing lists and other forums for CBGD and other manifestations of Parkinson's Plus that you can find at the Neurological WebForums at Massachusetts General Hospital (part of Harvard). The main web site is at: http://neuro-mancer.mgh.harvard.edu/cgi-bin/Ultimate.cgi You will need to register and then there are a lot of specific groups you can join. The ones I have signed on are very informative and give you a better grasp from a patient and caregivers point of view. I hope I have help you and anyone else with PDP (MSA). Parkinson's is cruel - Parkinsons Plus is a whole different story. Once you have investigated these avenues, please let me know what you thinnk, either through this group or through regular email at [log in to unmask] David caregiver for mom, 68 now/preliminary diagnosis at age 64 [log in to unmask] wrote: > Chloe, > Funny you should ask, but a visit to the Dr. 2 weeks ago re-diagnosed me > with PD+, whatever that is. The reason given was because I hadn't been > responding to the medicine with no noticable on & off times. What are they > telling your mother? My balance is terrible, i get around with wheels. I > was diagnosed six years ago and have been progressing fast.(not walking, not > writing well, not speaking clearly). > > Sorry! > > Patricia > six years-age 63 now