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I agree that sharing is the critical factor. I believe we as a group will find significant patterns that a clinical researcher could never see. These are how significant findings are often discovered. I'm game. Beverly -----Original Message----- From: Arthur Hirsch <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, March 08, 2000 10:56 AM Subject: Re: Rating scales. Was: Long term prognosis >Since Parkinson's is a "designer disease," different for each one of us, it >seems as though we should at least start with have a "designer scale," >different for each of us. Each of us has some "litmus tasks" that we do - >that are easy to do at some times, harder to do at others, and often >quantifiable in some manner as to difficulty of performance.. We can >measure ourselves by outlining these litmus tasks and plot our progress >over the course of days and in the presence of different environmental >variables. > >Now, Dr. van der Lnden, here is where the internet comes in - once we have >our own "designer scale," we can share it with others. There will be some >scaling items for one person that are different from the scaling items of >others, some that are the same. And as we share our designer scales >through the internet, each of us may pick up some points that we had missed >on ourselves and change our own "designer scale." > >The environmental variables, which may be little more than background noise >in many cases, could turn this into a multidimensional model - many causes >contributing to several effects. But perhaps we now have the tools to work >with the many dimensions, where we did not even several years ago. > >Finally some candidate for a PhD in medical research comes by, codifies the >data into one scale, and becomes immortalized like Hoehn and Yahr. > >It might work? > >Art > >At 08:49 AM 3/8/00 , Dr. Chris van der Linden wrote: >>>-snip- It would >>be wondeful, considering the extensive use of the internet, that patients >>should come up with suggestions to create a scale for themselves to be able >>to give other fellow patients an idea on their condition and to have an idea >>of the condition of the person they are "chatting" with. >>Anybody interested?? >> >>Best regards, >> >>Dr. Chris van der Linden >>