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Hi Phil, As a PWP, I strongly agree with you re: the UPDRS not covering some very important areas of progression. In fact, on numerous occasions (probably every office visit!!!) I have told my neuro/nurse "you don't ask the right questions to understand the impact or changes of the disease for me". I truly wish that a broader scale could be developed. I think it does prevent all but the "most open minded" neuro's from comprehending the impact of the PD on daily/family living. I have also suggested a questionaire for the Carepartner that could be a checklist completed in the waiting room (most of us have plenty of time there!)....which could be helpful in the evaluation/suggestion/ modification/communication of treatment/medication. The other thing I notice is that as we "accept" the limitations of the progression of PD, the answers to some of the questions on the UPDRS improve. What bothered me in the beginning, may seem insignificant now in the realm of everyday living and frustrations. Also my "mood" when I am asked these questions may vary.........if I am "on", I will answer one way..........if I am "off", I will usually give a more positive answer. This seems a bit different than one might anticipate....but when I am "off" I do not want to talk, elaborate, define, think.........so therefore give the answer that will require the least followup information from me. So, how do we ever get the medical community to hear our requests for an updated version of an old problem.........? Rita Weeks 55/10