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Jeanne, Thank you so much. This is beginning to make sense to me now. I'm sure someone has told me this before but my light bulb didn't come on. HA!Hurry up April 6th. Shirley ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ ----- Original Message ----- From: Parkinson's Disease Foundation <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, March 09, 2000 9:43 AM Subject: Re: On-Off (Shirley) > Neurologically, Mysoline is a drug that is commonly used in the treatment of > Essential Tremor (also called benign or familial tremor). Because it can > cause sedation, many ET patients take it at night so that they sleep through > the side effects yet wake to benefit. > > What is Essential Tremor? It is another neurologic disorder in which tremor > is the only symptom. The tremor seen in ET is different from that seen in > PD: A PD tremor is often described as an "at rest" tremor while the tremor > of ET is an "action" tremor, descriptions which indicate when the tremors > are most noticible. Another difference is that ET can affect the head (in a > yes-yes or no-no motion) which is not seen as part of PD. I've also seen ET > patients whose tongues were affected! Again, this is not typically seen in > PD. > > ET is also much more prevalent than is Parkinson's disease. In the US, it > is estimated that there are approximately one million PD patients. In the > US, there are approximately 4-6 million ET patients. Because both are > common in the "older" age group, both can occur concurrently in an > individual which can cause difficulties - in the earlier stages - with > diagnosis. > > There is an organization dedicated specifically to ET, called the > International Tremor Foundation. I don't know if they have a website but > their offices can be reached at (913) 341-3880. > > Jeanne Lee-Rosner > PDF-Chicago > > > ----- Original Message ----- > From: Edward Kleinmeyer <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, March 08, 2000 4:49 PM > Subject: Re: On-Off (Shirley) > > > > All,The only thing I have ever been given is MYSOLINE 50mgs.of which I am > up > > to 2 at bedtime. I don't even know what it is for. I do have that > appt.April > > 6th in Iowa City,Iowa. It's with a Movement Disorder clinic. I had to make > > those arrangements myself.Does anyone know what this MYSOLINE is and what > it > > is used for?It does work short term on the tremors. Shirley > > ----------------------------------------------------- > > Click here for Free Video!! > > http://www.gohip.com/freevideo/ > > > > ----- Original Message ----- > > From: Juanita Hibbert <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Wednesday, March 08, 2000 2:35 PM > > Subject: Re: On-Off (Shirley) > > > > > > > My thoughts Shirley. GET A NEW DOCTOR! Those tests are part of a > > > nuerological exam, however not a very > > > good indicator as to Parkinson diagnosis. > > > or not. Like Greg asked ,did you respond > > > to Carbidopa/levedopa or have has it > > > ever been perscribed? We have been told > > > by several reliable medical resources,"if > > > you respond to this med. it is a good in- > > > dicator of PD." > > > There is just a bit of my GREAT wisdom. > > > Take it for what ever good it may do you. > > > Hugs! Juanita CG for George 73 dx 2+yrs > >