Therapeutic cloning in the UK
In January 1998, the HGAC (Human Genetics
Advisory Commission) and HFEA (Human Fertilisation and Embryology Authority)
decided to form a joint working party to assess the legal, scientific, clinical
and ethical issues arising from the development of cell nucleus replacement
(CNR) technology. The consultation drew on the views of a broad cross
section of society and a range of experts, and their recommendations were
published in December the same year (HGAC Papers 1998, www.dti.gov.uk/hgac). Amongst other
things, they were able to recommend that the present law governing the creation
of, and the use to which human embryos may be put in research (HFE Act 1990,
covering in vitro fertilisation) should be extended to allow the development of
therapies for the replacement of diseased or damaged tissue or organs. This
would allow research using embryos created via CNR and would clearly include
tissue replacement for Parkinson's Disease.
On June 24th 1999, the then Secretary of State
for Health, Frank Dobson, rejected this advice. This decision was made in
the wake of the BSE and GM food crises, amid great public concern regarding the
rate and direction of the new technologies and never ending scare stories
regarding cloning in the press. A new cloning panel was set up to reassess
the issues involved (www.doh.gov.uk/cegc/). This was
chaired by the Chief Medical Officer, Prof. Liam Donaldson and included the
Chief Scientific Advisor to the Government Sir Robert May and a range of
experts. They were due to report their findings on 31st Jan 2000, though
due to an unforeseen delay they have yet to report. An announcement is
expected very soon.
Even if the cloning panel reports favourably
(which it may not), any amendments to the Human Fertilisation and Embryology Act
(HFE 1990) will involve the passage of a Bill through the two Houses of
Parliament. There is likely to be considerable opposition to changes in
the Bill, while time constraints might also prove limiting in the run up to the
next General Election. It is conceivable that the delay of months envisaged by
Ministers for the present reassessment will turn into years. For people
with Parkinson's these delays are unacceptable.