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At 04:59 PM 2000/03/27 -0500, Joan Dykstra <[log in to unmask]> wrote:
>Hello Friends -
>   I am so envious of you who are so capable of writing regularly on this
>list, and I appreciate you doing it.  Maybe someday I, too, will find
>something that works well enough for me to allow me to be helpful to someone,
>too.  My tremor is on both sides now and no medicine seems to help much.
>Cogentin slows it down a little, but it takes my memory away.  When I take
>Cogentin I can't finish sentences.  I can't even read sentences.  When I get
>to the end of the sentence I can't remember the first of the sentence.  I'm
>on no meds at the moment and that allows me to think, but the typing is quite
>a challenge and my muscles ache from all the shaking.   I'm hoping there
>might be a surgery that would be helpful without being damaging.  Is anyone
>doing the electrical stimulation of the thalamus on both sides?  Where is the
>preferable place to go?  Who are the preferable surgeons to go to?  I am open
>to anyplace.  We live in the South Pacific, but are willing to travel.  Any
>ideas?
>Joan 59 yo, diagnosed 48 yo.
>

hi joan

check out that generous and courageous bunch the hole in the head gang
for their surgery stories on my website under pienet/people

do none of the other pd drugs help you?
are you seeing a movement disorder specialist?

janet


janet paterson
53 now / 41 dx / 37 onset
a new voice: http://www.geocities.com/janet313/
613 256 8340 PO Box 171 Almonte Ontario Canada K0A 1A0