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To: Joan Dykstra,

It sounds to me that your drug respnse is declining to - or already has
declined - to the point that surgery is justified.

I can only go by my experience.   I can give an unqualified recommendation
to Dr. Andres M. Lozano at the Toronto Western Hospital ((416) 603-6200) as
a neurosurgeon.  He is probably the leading functional and stereotactic
neurosurgeon doing Parkinson's surgery today.

THe secod edition of my "Neuosurgery for Parkinson's Disease " will be out
in mid-May.

Feel free to phone me at (416) 925-4814

Cheers,

Bill
----- Original Message ----- //
From: "Joan Dykstra" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, March 27, 2000 3:59 PM
Subject: Surgery for PD?


> Hello Friends -
>    I am so envious of you who are so capable of writing regularly on this
> list, and I appreciate you doing it.  Maybe someday I, too, will find
> something that works well enough for me to allow me to be helpful to
someone,
> too.  My tremor is on both sides now and no medicine seems to help much.
> Cogentin slows it down a little, but it takes my memory away.  When I take
> Cogentin I can't finish sentences.  I can't even read sentences.  When I
get
> to the end of the sentence I can't remember the first of the sentence.
I'm
> on no meds at the moment and that allows me to think, but the typing is
quite
> a challenge and my muscles ache from all the shaking.   I'm hoping there
> might be a surgery that would be helpful without being damaging.  Is
anyone
> doing the electrical stimulation of the thalamus on both sides?  Where is
the
> preferable place to go?  Who are the preferable surgeons to go to?  I am
open
> to anyplace.  We live in the South Pacific, but are willing to travel.
Any
> ideas?
> Joan 59 yo, diagnosed 48 yo.
>