 |
 |
At 04:26 PM 2000/03/29 -0500, george pospisil <[log in to unmask]> wrote: >Yes, a prototype registry is under construction at Parkinsonsregistry.org. >Initially, at least, access will be through the several major patient >advocacy organizations and links through their web sites. Last questions >are being worked on now, and it should be up and running shortly, though >human subjects/ consent regulations here are a major consideration that >needs to be addressed. We're happy there is an interest. Yes, it should >help make a major contribution to research directions. Curt Pospisil hi curt can you tell us more? who is 'we'? janet janet paterson 53 now / 41 dx / 37 onset a new voice: http://www.geocities.com/janet313/ 613 256 8340 PO Box 171 Almonte Ontario Canada K0A 1A0