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There is a certain way blood pressure should be taken--laying, sitting, and standing within time intervals. Ask ur neurologist about orthostatic hypotension,and a drug called proamatine, and/or try calling Vanderbilt University, they maybe familiar with the disease and possible sites. I was initially diagnosed with sds but it was later changed:) Nancy:) Nancy Spires wrote: > > MY blood pressur is very low when i stand and quite high when reclining. are > there other signs of shy-d? and i always feel dizzy and weak. been on > sinemet since 97 and added one amantadine 2 mo. ago. is it important to > distinguish from pd? do you know of a web site/support group like this? > nancy spires