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thank you for your clarifications it assists enormously with my confidence and well being to have knowledgeabe mentors who have lived with the condition i have iinvestigated the australian sites for support and help and now with retirement and time will dig further into australias efforts with parkinson's and familial tremors judy >From: Camilla Flintermann <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Diagnosis ... >Date: Tue, 11 Apr 2000 12:37:28 -0400 > >Hi Judy--- >I woinder why the neuro didn't try Sinemet, which tends to be pretty >diagnostic---what was supposed to happen in 3 months to clarify things? >The term congernital tremors may refer to a condition called "familial >tremor", which is NOT PD. Tremor alone, after 15 years with no other >symptoms of PD would seem to suggest another condition, not PD. >Have you been in touch with the PD organizations in Australia? If not, >here's a way to reach them: > >* Art Hirsch's website-- >http://www.fortunecity.com/meltingpot/farley/817/blynx.html >Go to "Organizations", then "Foundations"--scroll down that list for > links. to PD resources in : > -Argentina- -AUSTRALIA- -Austria- -Belgium- -Brazil- >-Canada- -Chile- -Colombia- -Czech Republic --Denmark- >-Faroes- -Finland- -France- -Germany- -Iceland- -India- >-Ireland- -Israel- -Italy- -Jamaica- -Japan- -Luxembourg- >-Mexico- -Netherlands- -New Zealand- -Norway- Peru -South >Africa- -Spain- -Sweden- -Switzerland- -United Kingdom- and >-WESTERN AUSTRALIA > >Your neuro should be familiar with the various PD meds, which can relieve >symptoms, but cannpot "cure" PD--yet, anyway. Often the failure to >respond to Sinemet is a way of telling that "it" is not PD. >Check these out if you haven't, and good luck!! >****** >Judy George wrote: > >Good evening all and greetings from Australia. About three months ago i > >visited a neurologist to seek a diagnosis. i have experienced worsening > >tremors in the hands for about 15 years. originally i was told that it >was > >"congenital tremors" .. and, as my father had had the same symptoms ... i > >didn't worry about it. > > > >on this visit, the neurologist thought that it 'could' be parkinson's > >disease ... but she was unsure ... and asked me to return in about three > >months. she wanted to see what the symptoms were like after resting. > > > >i am concerned about all of this and would like to know, if anyone can > >advise me, about options for diagnosis ... and, also, if anything can be > >done to arrest the development of the disease? > > > >thanking you all in advance > >judy > >______________________________________________________ > >Get Your Private, Free Email at http://www.hotmail.com > > >Camilla Flintermann, CG for Peter 81/70/55 >Oxford, Ohio >http://www.newcountry.nu/pd/members/camilla/one.htm ><[log in to unmask]> > >also, on PDWebring at http://members.tripod.lycos.nl/genugten/flinterm.htm > > > "Ask me about the CARE list for > Caregivers of Parkinsonians ! " ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com