 |
 |
On 11 Apr 2000, at 3:28, Barb_MSN wrote: > Hi Sue.... > > First of all, there's never been a "posting limit" on this List > that I know of, and I've been logging on daily for 'bout 6 years > or so. > > If there IS a limit to the number of messages one can post at a > time then SOME of us are in BIIIIIIIG trouble! <grin> > > So relax, m'dear, and post away - get it all out and know you can > count on the folks here on the List to be supportive as well as > knowledgeable about our mutual adversary, Parkinson's Disease. > Unwritten Rule #1 is "There are no dumb questions" so feel free to ask anything that concerns you and expect a response. 1900+ people subscribe to this List and there are thousands of years of hands on experience with Parkinson's and with symptoms,diagnosis, denial, anxiety, etc. etc. ... > > Regarding your questions, please keep in mind that I'm not an MD, > but rather have had PD for 25 of my 57 years. I"m the the most > "up" on the disease whom you'll hear from over the next few days, > but I have a more than a little general information. > Barb made a "typo" but even if she is NOT the most "up", her opinions command a lot of respect from this PWP..... <hugz> > > Your question #1: > > Your mom should be seen and diagnosed by at least once by a > neurologist who is a "movement disorder specialist. This time > might be the best time for for your mother to see this type of > specialist since you both have unanswered questions with her > current neuro. > Barb and Sue (and all) I agree! Anyone who "thinks" they may have any of the "movement disorders" should promptly seek out a movement disorder specialist. I f you need help finding one, just ask... > > There's one easy way to find out if someone has PD > and that's to give them Sinemet (the "gold standard" > of PD drugs). If it dosn't work then mom almost > certainly doesn't have PD. > > As far as PD not being diagnosable at "this stage," > there ARE noticable symptoms and a half-way decent > neuro SHOULD be able to diagose your mother > based upon those symptoms. > Your mother should see a movement disorder specialist... > > Question #2: > > Parkinson's CAN be inherited, tho it's not terribly > common to find familiel PD families on every street > corner. There are lots of folks here in the List and at > many of our local PD support groups who know someone > ARE someone who's the third or forth direct decendant of > someone or other in their family to have PD, or one > of the other PD-like diseaes, referred to as > "Parkinson's Plus." > Righton again Barb... My great aunt had Parkinson's... > > Question #3: > > Mom's neurologist is just plain wrong! See > above response.... > > Hang in there, Sue. And the next time you go to or > speak with mom's neuro or another MD who might > see her, go armed with a list of all your, AND a > portable tape recorder (if possible) so you can tape > the MD's response. It's SOOOO easy to forget > to write down the doctor's response to those questions. > his way you won't have to worry about rushing to write > it all down. > See my post April 9 on Doctor's Visit... Checklists etc. > > Hang in there, Sue, and hugs to mom 'n you... > > Barb Mallut > [log in to unmask] > All my best to both of you .......... murray