Dear Kristi: Hi sweetie and thanks for taking the time to research your
topic-you've certainly found the right place; but i think it's best to
point out right at the start that there is nothing "cute" at all about
our disease. i'm not trying to be a jerk hen you're obviously so well
-intentioned and young and learning about awareness, but I'd like for
you to think about ha being a mom w/ pd is really like...i have had "a
muffled voice" for a long time now. My darling daughter who is 12 really
need me to talk to, but she gets so discouraged by how long it takes me
to say what is in my heart, that she will stomp away in frustration-not
at me but at this disease that she hates so much. I don't know which is
worse, that kind of treatment or my 10 yr. old son crying because I
never smile anymore although i am smiling inside!! They both don't
understand the ramifications of this disase-they only know that mom
can't drive for field trips anymore, can't make all of their games &
concerts anymore and why we're always the first to leave any function.
So please, while I know you heart is in the right place-try to put
yourself in a situation where you have something so very important to
say but have neither the energy nor the wherewithal to get it out...and
how hard it is to have people patronizingly smile and say yes, isn't
that the truth (when you weren't even talking about anything like that)
and go merrily on their way...as if you we're even there.
--
Joan E. Snyder 48/10
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"Hang tough.....no way through it but to do it."
Chris-in-the-Morning (Northern Exposure)
