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Jon you shane me and trivialize me. i am so sorry i have inadvertently given this young lady the impression that it is fun not to be heard; cute to have your children disrespect you, and fulfilling to be denied the right to parent your own children. my intentions were totally the opposite. in my struggle against the social work community,,, i used the phrase 'mask of Parkinsonism' many times as a defence against the accusation of nnon participation or lack of interest. And i hve begin to use ''muffled voice's in a similar fashion. vut your words struck home, and i freely apologies for giving tes wrong impression. ''and i hand over to you the accolade i so recently was given -- aGIVING JOAN A MICROPHONE IS LIKES ARMING A GUIDED MISSILE Stan or Joan Snyder wrote: > > Dear Kristi: Hi sweetie and thanks for taking the time to research your > topic-you've certainly found the right place; but i think it's best to > point out right at the start that there is nothing "cute" at all about > our disease. i'm not trying to be a jerk hen you're obviously so well > -intentioned and young and learning about awareness, but I'd like for > you to think about ha being a mom w/ pd is really like...i have had "a > muffled voice" for a long time now. My darling daughter who is 12 really > need me to talk to, but she gets so discouraged by how long it takes me > to say what is in my heart, that she will stomp away in frustration-not > at me but at this disease that she hates so much. I don't know which is > worse, that kind of treatment or my 10 yr. old son crying because I > never smile anymore although i am smiling inside!! They both don't > understand the ramifications of this disase-they only know that mom > can't drive for field trips anymore, can't make all of their games & > concerts anymore and why we're always the first to leave any function. > So please, while I know you heart is in the right place-try to put > yourself in a situation where you have something so very important to > say but have neither the energy nor the wherewithal to get it out...and > how hard it is to have people patronizingly smile and say yes, isn't > that the truth (when you weren't even talking about anything like that) > and go merrily on their way...as if you we're even there. > -- > Joan E. Snyder 48/10 > [log in to unmask] > <http://members.tripod.lycos.nl/genugten/snyder.htm> > "Hang tough.....no way through it but to do it." > Chris-in-the-Morning (Northern Exposure)