 |
 |
now i'm hurting everybody's feelings again. i'm sorry. i still think it is a good catch phrase. and i think you are doing estimable work, kristi, and joan i have long admired you. Time for me to disappear off the list for a while,again, i think. hilary Kristi Fleming wrote: > > Hello all, > I'm sorry to have caused such a commotion! I do not take PD lightly. I had an > uncle who was very dear to me become afflicted in his early forties. If you would > like to see the full extent of my research go to: > http://webpages.marshall.edu/~fleming11/ > you can find my homepage and at the bottom are the links to my research paper's > very rough draft. My assignment was to make a presentation to my class based on > interesting facts, statistics, and such to prompt my peers who see the > presentation to want to go and read my paper. I'm sorry to have asked. I didn't > think I would have been taken the wrong way. THAT WAS NOT MY INTENTION in joining > this list or asking quesitons. I wanted to further my knowlege. > Kristi. > > Hilary Blue wrote: > > > Jon > > you shane me and trivialize me. i am so sorry i have inadvertently given this > > young lady the impression that it is fun not to be heard; cute to have your > > children disrespect you, and fulfilling to be denied the right to parent your > > own children. > > my intentions were totally the opposite. in my struggle against the social > > work community,,, i used the phrase 'mask of Parkinsonism' many times as a > > defence against the accusation of nnon participation or lack of interest. And > > i hve begin to use ''muffled voice's in a similar fashion. vut your words > > struck home, and i freely apologies for giving tes wrong impression. ''and i > > hand over to you the accolade i so recently was given -- > > aGIVING JOAN A MICROPHONE IS LIKES ARMING A GUIDED MISSILE > > > > Stan or Joan Snyder wrote: > > > > > > Dear Kristi: Hi sweetie and thanks for taking the time to research your > > > topic-you've certainly found the right place; but i think it's best to > > > point out right at the start that there is nothing "cute" at all about > > > our disease. i'm not trying to be a jerk hen you're obviously so well > > > -intentioned and young and learning about awareness, but I'd like for > > > you to think about ha being a mom w/ pd is really like...i have had "a > > > muffled voice" for a long time now. My darling daughter who is 12 really > > > need me to talk to, but she gets so discouraged by how long it takes me > > > to say what is in my heart, that she will stomp away in frustration-not > > > at me but at this disease that she hates so much. I don't know which is > > > worse, that kind of treatment or my 10 yr. old son crying because I > > > never smile anymore although i am smiling inside!! They both don't > > > understand the ramifications of this disase-they only know that mom > > > can't drive for field trips anymore, can't make all of their games & > > > concerts anymore and why we're always the first to leave any function. > > > So please, while I know you heart is in the right place-try to put > > > yourself in a situation where you have something so very important to > > > say but have neither the energy nor the wherewithal to get it out...and > > > how hard it is to have people patronizingly smile and say yes, isn't > > > that the truth (when you weren't even talking about anything like that) > > > and go merrily on their way...as if you we're even there. > > > -- > > > Joan E. Snyder 48/10 > > > [log in to unmask] > > > <http://members.tripod.lycos.nl/genugten/snyder.htm> > > > "Hang tough.....no way through it but to do it." > > > Chris-in-the-Morning (Northern Exposure)