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my limited understanding of the australian scene indicates that most states of australia and i am not sure about both tterritories have sites these seem fairly basic in their site information i have had communication with the victorian site manager western australia *seems* to be the state with the research priority these are just gut feelings but *sometimes* australia has state of the art medical expertise i will keep digging judy >From: janet paterson <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: What / have those canadians gone and done now? >Date: Thu, 20 Apr 2000 03:44:35 -0400 > >hi all > >At 12:08 AM 2000/04/20 -0500, William Harshaw <[log in to unmask]> wrote, >in part: > >... during which the Foundation was reinvented with a new name > >"Parkinson Society Canada" and a new mission statement "We are the voice >of > >the Parkinson community in Canada".... the new CEO and National Director > >of Parkinson Society Canada. She is Mary Jardine, and she comes to us >from > >the BC & Yukon Division of the Canadian Cancer Society. Mary has > >substantial experience in the voluntary health charity sector.... > >this all sounds very positive and very promising! > >i have been concerned about the canadian pd orgs for some time > >i'm very happy to hear of these changes > >in the past months i was asked my opinion about pd orgs in general >and about the apparent de-railing of the national canadian one in >particular >by some cyber-pals; i include my response here for what it's worth > >the concept of 'voices being heard' rings loud in this part of ontario! > > >janet > > >-------------------------------------- >my thoughts in a nutshell: > >back to the knitting i.e. the basics >[self-examination can be painful but is essential for growth: >no guilt no blame no recrimination: just the facts, ma'am] > >1. purpose: >what is/are the purpose/mission/goals of the pfc? >[as stated at its inception and assuming they are still valid] > > a. when did the pfc do the best job of meeting those goals? > b. when did the pfc do the worst job of meeting those goals? > c. how did the pfc get off track? > d. how can the pfc get on track? > >2. premise: >IF no pwp = no pfc: >THEN pwp = customers = top priority = their voices have to be heard >nationwide > > a. supporting pwp = the destination > b. communication /research /clinics = the vehicle > c. pd awareness and funding = the fuel > >3. precedent: >why re-invent the wheel? >who else is doing this 'right' on a national basis? >U.K.? U.S.A.? Australia? New Zealand? South Africa? > >the most important person has to be the Person With Parkinson's [PWP] >not the Gigantic Pharmaceutical Corporation [GPC] >not the Incredibly Generous Donor [IGD] >in my humble opinion [IMHO] > >-------------------------------------- > >janet paterson >53 now / 41 dx / 37 onset >a new voice: http://www.geocities.com/janet313/ >613 256 8340 PO Box 171 Almonte Ontario Canada K0A 1A0 ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com