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thanks for the information on sites it looks magnificent judy >From: Linda J Herman <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Parkinson's Web Sites >Date: Sat, 15 Apr 2000 07:49:01 -0400 > > Thanks for your reply, Murray - I thought this site was great: >Newly Diagnosed With PD >http://spring.parkinsons.org.uk/spnewly.htm >I couldn't connect to the FAQ site - could you check the URL? >The Frequently Asked Questions About Parkinson's Disease >http://etb.ninds.nih.gov/PDFAQ.html > > I wasn't suggesting yet another PD web site - but maybe links and >access to some of the "gems" could be expanded and improved. Also >helpful is a short description of what the link is about, if it's not >clear by the title. > >Below is a listing of Web sites that Barb Blake-Krebs, who is still >recuperating, and I compiled for the appendix to our book on young onset >PD, Behind the Masks, ( which is still under consideration for >publication - they ask us to "be patient.") It is based on suggestions >from the list and our own favorites, and is open to other >recommendations (especially for non U.S. organizations and young onset >sites) -- or corrections if you note an error, or ommissions. We will >also look through all of Murray's recommened sites. Thanks >Linda > >PARKINSON'S DISEASE ON THE WEB > >There are at least a few hundred web sites about PD. The following sites >have been recommended by members of the Parkinsn list for being >informative, accurate and up-to-date. Each category is in alphabetical >order. > >Subject Directories and Indexes to other PD Web sites : some good places >to start: >Ask Noah: Parkinson's Disease >http://www.noah.cuny.edu/neuro/parkin.html > >Index to Parkinson's Disease Information on the Internet.- one of the >most complete and well indexed - compiled by Phil Tompkins, PD list >member. > http://www.pdindex.org > >Parkinsonian Links - created and maintained by Art Hirsch, PD list member > >http://www.fortunecity.com/meltingpot/farley/817/blynx.html > >Parkinson's Web - Massachusetts General Hospital >http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/PDmain.html >(currently under construction) > >Young Onset PD Sites > >Arlette Johnson APDA Young Parkinson's Information & Referral Center >http://members.aol.com/apdaypd/young/index.html > >YOUNG ONSET PARKINSON'S DISEASE : an online article >By Emma Bennion, list member >http://www.parkinsonsdisease.com/lwp/lwp.htm > >Young Parkinson's Handbook (online version) >http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/YOPD_Handbook/YOP >D_TOC.html#TOC > >"The Young Parkinson's patient" - an article by Dr. E. Montgomery >http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/Support/youngpark >.html > >PD Organizations - all of these contain lots of good information, online >publications and links to other PD web sites. > >American Parkinson Association >http://www.apdaparkinson.com > >European Parkinson's Disease Association >http://www.epda/home.html > >National Parkinson's Foundation (NPF): > http://www.parkinson.org. > >Parkinson Disease Foundation >http://www.pdf.org/ > >Parkinson's Action Network (PAN) > http://parkinsonsaction.org/ > >Parkinson's Association of Western Australia >http://www.quartec.com.au/parkinsons/ > >Parkinson's Disease Society of the United Kingdom >http://www.shef.ac.uk/misc/groups/epda/parkuk.htm > see also: >The Newly Diagnosed - from the web site of SPRING, (Special Parkinson's >Research Interest Group): official Special Interest Group for Medical >Research, Parkinson's Disease Society of the UK. >http://spring.parkinsons.org.uk/spnewly.htm > >Parkinson's Foundation of Canada >http://www.parkinson.ca/ > >Parkinson's Unity Walk >http://www.parkinsonwalk.org > > We MOVE _ World wide Education and Awareness for Movement Disorders >http://www.wemove.org/ > >World Parkinson's Disease Foundation >http://www.wpda.org/ > >Other PWP recommended web sites > >AWAKENINGS : Current news, treatments, research, links to PD >organizations and support groups from around the world. >www.parkinsonsdisease.com > >Current Parkinsn's List E-mail messages: web site maintained by list >member John Cottingham. View the 50 most recent PD list messages >http://www.ionet.net/~jcott/parkmail/maillist.html > Also see John's other web sites, including: >Parkinsn List Drug database - information on PD drugs and interactions >with other medications. >http://www.ionet.net/~jcott/homepage/drugdb/drugdb.html >Parkinsn Archive Treasures >http://www.ionet.net/~jcott/homepage/archive/patp.html > >Diagnostic criteria for PD - from the Archives of Neurology >http://archneur.ama-assn.org/issues/v56n1/full/nsa7701.html > >James: a site about Parkinson's : List member Simon Cole's website - >the international online PD community, plus other informative links. >http://james.parkinsons.org.uk/ >Also see: >Parkinsn List Archives - searchable archives of the Parkinsn List 1994 - >present. >http //james.parkinsons.org.uk/search.htm> >The Parkinson's community on the Internet >http://james.parkinsons.org.uk/community.htm > >National Institute of Neurological Disorders and Stroke, NIH >http://www.ninds.nih.gov/ > > see also: The NIH Parkinson's Disease Research Agenda (March 2000) >http://www.ninds.nih.gov/whatsnew/pdagenda2000/nihparkinsonsagenda.htm > >The Newly Diagnosed : Helpful facts and information from the Parkinson >Foundation of Canada. >http://www.parkinson.ca/newlydiagnosed.html > >NPF Online Publications: Includes information on nutrition, exercise, >speech, medications and much more. > http://www.parkinson.org/onlinpub.htm > >Parkinson's Facts: basic information from the National Parkinson's >Foundation >http://www.parkinson.org/eduindex.htm > >The Parkinson's Institute: Parkinson's Disease information >http://www.parkinsonsinstitute.org/parkinsons.html > >Parkinson's News From the Front Lines, compiled by Paul Mote - contains >news, writings, etc. by PWP >http://www.coyotewebart.com/parkinsons_news/ > >PD Rating Scales (progression of the disease by stages) >http://neurosurgery.mgh.harvard.edu/pdstages.htm > >the PieNET : the parkinson's information and exchange network - compiled >and maintained by list member Janet Paterson - how to join, what PIEN is >all about, meet some of it's members. >http://www.geocities.com/janet313/pienet/index.html > >U.S., Canadian and Australian Support Groups Database, created by list >member Arthur Hirsch. >http://www.fortunecity.com/meltingpot/farley/817/asupport.html ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com